missluuluu495
Member
- Joined
- Nov 12, 2023
- Messages
- 15
- Reason
- PALS
- Diagnosis
- 05/2023
- Country
- US
uncontrollable biting. Doesn’t matter if it’s a utensil, toothbrush or my finger; when something goes in my mouth I start biting. It’s made oral care very hard. And now my bottom lip keeps finding Its way between my teeth and getting bit. I now grind my teeth too.
Ocular fixation. Sometimes my eyes get stuck and I can’t look away. But there’s other times when I can’t open my eyes.
Itching. If I sit in one spot and don’t move for a long time, then I’m itchy when I finally move. The elastic from my clothes seems to dig into me. And the sudden change in blood flow to those areas makes it itchy. But I can’t scratch it, so it drives me wild and sometimes makes it hard to breathe.
Poor circulation. When I was still able to walk, I noticed mottled coloration on my legs. Now, I can’t walk and blood is pooling in my feet turning them purple and ice cold.
Dry skin. I now have dry peeling skin on my face, ears and scalp.
Shivers. I get a tickle in my ear that causes me to shiver. When I was able to walk, it was so strong that it would make me fall.
Insomnia. I am a side sleeper. But I can’t reposition myself easily. And my left leg hurts, I’m assuming from poor circulation. I can’t get in a comfortable position to sleep. But sometimes it’s an ache in my left leg that wakes me up and then I have to move it around to make the pain go away.
Ocular fixation. Sometimes my eyes get stuck and I can’t look away. But there’s other times when I can’t open my eyes.
Itching. If I sit in one spot and don’t move for a long time, then I’m itchy when I finally move. The elastic from my clothes seems to dig into me. And the sudden change in blood flow to those areas makes it itchy. But I can’t scratch it, so it drives me wild and sometimes makes it hard to breathe.
Poor circulation. When I was still able to walk, I noticed mottled coloration on my legs. Now, I can’t walk and blood is pooling in my feet turning them purple and ice cold.
Dry skin. I now have dry peeling skin on my face, ears and scalp.
Shivers. I get a tickle in my ear that causes me to shiver. When I was able to walk, it was so strong that it would make me fall.
Insomnia. I am a side sleeper. But I can’t reposition myself easily. And my left leg hurts, I’m assuming from poor circulation. I can’t get in a comfortable position to sleep. But sometimes it’s an ache in my left leg that wakes me up and then I have to move it around to make the pain go away.