I just want to say that I am thankful for this website, and anyone that can offer some advice for me. I know that this is a very hard disease to have, and I am praying for those that are diagnosed with it. I have many undiagnosed symptoms and am wondering if anyone with ALS had symptoms that presented this way or does anyone think that it could be a slow onset ALS. About 5 1/2 years ago I had a flu shot and a few days later I started having twitches every 30 seconds all over my body (everywhere that I have a muscle). I also had a rapid heart beat and couldn't sleep much for 3 weeks straight because of the myclonic jerks. Thankfully this all went away after about a month, and didn't have many problems except for a daily twitch here and there. Two years later I had another bout of symptoms, although this time it was a little different. I again couldn't sleep for the jerks in my sleep, I had twitches everywhere, but this time my right leg was weak feeling and heavy. Those symptoms eventually went away after about a month, and now I am in the middle of another episode. This time it is more concerning than ever. It started with my neck hurting really bad and feeling like it was hard to hold my head up. My neck has hurt so bad that I can't hardly turn my head sideways. The pain from this comes and goes as I am taking IB profen and have been having massages. Also, I am having twitches again which are mostly in my right leg but sometimes in my left, and occasionally other places. My right leg also feels very week and I have had a shooting pain that comes several times a day. I can walk and go up and down stairs, but when walking on stairs, my right leg shakes a little. I tend to drop things a lot with my hands, and I stumble when walking quite a bit but thought that I was just clumbsy. I have been to a neurologist who did a sleep deprived EEG and an MRI that was looking for MS. Both came back normal. She also said that my physical tests looked normal to her. Do you think that this could be ALS? I am 29 years old and just got married 1 year ago. Anyone that can offer advice to me would be so helpful. Whether I have ALS or not, I would like to somehow get involved with helping to raise awareness and raise money for those who suffer from this disease.