Mommi2One
New member
- Joined
- Jul 25, 2008
- Messages
- 6
- Reason
- Learn about ALS
- Country
- US
- State
- Ohio
- City
- Clarksville
Hi!
I am fairly certain I have ALS and just need to talk to someone who may have/may be going through the same things because I FEEL this, but no one can SEE it.
I am having internal tremors 24 hours a day. My entire body shakes inside, but you can't see it when you look at me. Also, my tongue is numb from the tip to the middle and I cannot feel my lips at all. I am not slurring my speech but I cannot talk as fast as I used to or else I "trip" over my words.
My maternal grandmother died of ALS 22 years ago. Back then they really didn't know much about it and she went undiagnosed for three years. I've read the statistics and FALS is fairly rare, but with my family history and these symptoms, I can't see how I could deny what looks obvious.
The internal tremors started about 2 months ago and were sporadic, sometimes only lasting 2-3 minutes. I didn't really even think much about it until the morning I woke up and they continued all day long - and have not stopped since (this was June 10th). I noticed the tip of my tongue being numb on June 11th. Now my tongue is numb from the tip to the middle. After I started to put things together, I realized my lips have been numb for about 6 months, but I thought I was just fighting a bad case of "chapped" lips. It wasn't until the other symptoms made me stop and think about it that I realized they didn't feel dry, they just feel "funny".
I visited my family doctor who agreed I have reason to worry. She wants me to make an appointment with a neurologist, which I will do as soon as my husband and I finish reviewing our financial picture to make sure we have things aligned in the event I need full time care eventually.
I don't want to talk myself into this, but I also feel like I can't ignore the facts. I have a strong faith and am not worried at all. I have a sense of peace, but at the same time I am curious how things progress so my family and I can be prepared.
I just turned 35 and have an 11 year old son. My husband knows about this and has been unbelievably supportive. It's just difficult because I "look normal" and he can't see what's going on inside my body.
Thoughts? Did anyone else start out with symptoms similar to mine? What was the road to diagnosis like?
All my best,
Mommi
-
I am fairly certain I have ALS and just need to talk to someone who may have/may be going through the same things because I FEEL this, but no one can SEE it.
I am having internal tremors 24 hours a day. My entire body shakes inside, but you can't see it when you look at me. Also, my tongue is numb from the tip to the middle and I cannot feel my lips at all. I am not slurring my speech but I cannot talk as fast as I used to or else I "trip" over my words.
My maternal grandmother died of ALS 22 years ago. Back then they really didn't know much about it and she went undiagnosed for three years. I've read the statistics and FALS is fairly rare, but with my family history and these symptoms, I can't see how I could deny what looks obvious.
The internal tremors started about 2 months ago and were sporadic, sometimes only lasting 2-3 minutes. I didn't really even think much about it until the morning I woke up and they continued all day long - and have not stopped since (this was June 10th). I noticed the tip of my tongue being numb on June 11th. Now my tongue is numb from the tip to the middle. After I started to put things together, I realized my lips have been numb for about 6 months, but I thought I was just fighting a bad case of "chapped" lips. It wasn't until the other symptoms made me stop and think about it that I realized they didn't feel dry, they just feel "funny".
I visited my family doctor who agreed I have reason to worry. She wants me to make an appointment with a neurologist, which I will do as soon as my husband and I finish reviewing our financial picture to make sure we have things aligned in the event I need full time care eventually.
I don't want to talk myself into this, but I also feel like I can't ignore the facts. I have a strong faith and am not worried at all. I have a sense of peace, but at the same time I am curious how things progress so my family and I can be prepared.
I just turned 35 and have an 11 year old son. My husband knows about this and has been unbelievably supportive. It's just difficult because I "look normal" and he can't see what's going on inside my body.
Thoughts? Did anyone else start out with symptoms similar to mine? What was the road to diagnosis like?
All my best,
Mommi
-