Randolph55
New member
- Joined
- Aug 16, 2021
- Messages
- 2
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- AU
Hi,
Since March I’ve had weakness in hands and feet (fumbling keys, struggling to plug phone into cable, general feeling of weakness from ankle/wrist downwards, the feeling of curled toes but doesn’t visibly look like it)
It started in March with 90% left side and 10% right side, with some strange tapping sensations in my feet (I’ve since concluded the foot issue is fasciculations as I can actually see parts of the skin twitch)
In early May the foot issue went away and then in early June the hand issue went away gradually (first a day or two of no weakness, then longer spells and eventually in early hand symptoms July gone entirely.)
By the end of July both hand and foot symptoms were back full time and much more evenly distributed between left and right.
Extensive blood work, brain and cervical spine MRI, lumbar puncture have all come back with no problems.
I am wondering if this on/off pattern of symptoms is commonly experienced in ALS?
There are very long waits between neurologist visits and this feels like a slow process. I’m also very worried as everything else has come back clean so far and I have no other potential diagnosis that I can identify.
Many thanks in advance
Since March I’ve had weakness in hands and feet (fumbling keys, struggling to plug phone into cable, general feeling of weakness from ankle/wrist downwards, the feeling of curled toes but doesn’t visibly look like it)
It started in March with 90% left side and 10% right side, with some strange tapping sensations in my feet (I’ve since concluded the foot issue is fasciculations as I can actually see parts of the skin twitch)
In early May the foot issue went away and then in early June the hand issue went away gradually (first a day or two of no weakness, then longer spells and eventually in early hand symptoms July gone entirely.)
By the end of July both hand and foot symptoms were back full time and much more evenly distributed between left and right.
Extensive blood work, brain and cervical spine MRI, lumbar puncture have all come back with no problems.
I am wondering if this on/off pattern of symptoms is commonly experienced in ALS?
There are very long waits between neurologist visits and this feels like a slow process. I’m also very worried as everything else has come back clean so far and I have no other potential diagnosis that I can identify.
Many thanks in advance