taratune
Active member
- Joined
- Feb 9, 2008
- Messages
- 35
- Reason
- Loved one DX
- Country
- US
- State
- CA
- City
- san diego
My brother had his first visit to the "multidisciplinary" ALS clinic yesterday. There was no Physical therapist, No Occupational therapist AND no Social Worker. Just a rude nurse, a doctor who offered nothing and a Respiratory Therapist who took a baseline reading of his breathing functions and said he was 107 % of expected....(at least this was good news.) They gave him a slip to come back to the ALS clinic in late July.
My brother is really having trouble getting around and we were really looking to talking to the PT for some mobility advise. My brother has been walking with a cane that he got from my father...but he has been getting pretty weak in one foot and can't feel it anymore. He has been pretty unsteady from time to time. Just after we left the hospital my brother fell on the sidewalk before we could get to the parking lot. My brother could not get back up.....even with my help. The security guard came over but we could hear the person on the other side of his walky talky telling him not to help pick him up.......that if my brother couldn't get up to call 911. Luckily my brother was ok he just couldn't get up. Well I had seen a wheelchair inside the entry and went to get it. Another security guard arrived and helped get my brother into the wheelchair and then to the car.
Today I made an appointment for my brother to be evaluated by a Physical Therapist at another hospital near where he lives. I hope they are familiar with ALS and will know how to help us. I was really hoping for more expertise at the ALS clinic.....but it seemed the whole trip was mostly just a waste of time. I would be interested in hearing from others about the medical care their PALS is getting and where we might find better care for my brother.....especially mobility advise. We live in San Diego.
Thanks so much,
Tara
My brother is really having trouble getting around and we were really looking to talking to the PT for some mobility advise. My brother has been walking with a cane that he got from my father...but he has been getting pretty weak in one foot and can't feel it anymore. He has been pretty unsteady from time to time. Just after we left the hospital my brother fell on the sidewalk before we could get to the parking lot. My brother could not get back up.....even with my help. The security guard came over but we could hear the person on the other side of his walky talky telling him not to help pick him up.......that if my brother couldn't get up to call 911. Luckily my brother was ok he just couldn't get up. Well I had seen a wheelchair inside the entry and went to get it. Another security guard arrived and helped get my brother into the wheelchair and then to the car.
Today I made an appointment for my brother to be evaluated by a Physical Therapist at another hospital near where he lives. I hope they are familiar with ALS and will know how to help us. I was really hoping for more expertise at the ALS clinic.....but it seemed the whole trip was mostly just a waste of time. I would be interested in hearing from others about the medical care their PALS is getting and where we might find better care for my brother.....especially mobility advise. We live in San Diego.
Thanks so much,
Tara
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