Jl1994
New member
- Joined
- Nov 25, 2024
- Messages
- 9
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
- State
- CT
Hello all,
Very grateful to be able to look for help on this forum.
I had a dirty EMG done about a year ago that did show what the md labeled "acute dennervation" Since then I have had two clean EMGS without the finding that was reported in 2023. What scares me is that my symptoms in the leg where the dirty finding was found has gotten worse. I do not have any clinical weakness yet but i have dysesthesia in the lower left leg. I can still feel all touch and sensory symptoms the leg just feels light, airy, and almost dead. It is almost like I have to think to lift it when I walk.
I do have a finding of small fiber neuropathy via skin punch biopsy. I have read that SFN and MND often co exist so the finding of this did not put me at ease. I also have a positive tilt table test for POTS. Besides this, the leg sort of aches at times.
The neurologist told me to come back in 6 months to be re evaluated.
- Clean Spine MRI
- Clean Brain MRI
- Currently being treated with IVIG for the SFN which I see no difference.
- bilateral hyperrefflexia
- atrophy of left limb
My question is---I know MND is supposedly no sensory. However, I have heard many other things from even some mods on this forum that they do admit to a small change in how the effected limb feels. Maybe it is not an overt difference but there is some sort of hard to explain change in how the limb feels. Mine feels light, airy and just different than the rest of my body. What is the referendum on SFN, feeling and ALS?
What is the general thinking on a dirty EMG followed by clean?
Thank you in advance!
Very grateful to be able to look for help on this forum.
I had a dirty EMG done about a year ago that did show what the md labeled "acute dennervation" Since then I have had two clean EMGS without the finding that was reported in 2023. What scares me is that my symptoms in the leg where the dirty finding was found has gotten worse. I do not have any clinical weakness yet but i have dysesthesia in the lower left leg. I can still feel all touch and sensory symptoms the leg just feels light, airy, and almost dead. It is almost like I have to think to lift it when I walk.
I do have a finding of small fiber neuropathy via skin punch biopsy. I have read that SFN and MND often co exist so the finding of this did not put me at ease. I also have a positive tilt table test for POTS. Besides this, the leg sort of aches at times.
The neurologist told me to come back in 6 months to be re evaluated.
- Clean Spine MRI
- Clean Brain MRI
- Currently being treated with IVIG for the SFN which I see no difference.
- bilateral hyperrefflexia
- atrophy of left limb
My question is---I know MND is supposedly no sensory. However, I have heard many other things from even some mods on this forum that they do admit to a small change in how the effected limb feels. Maybe it is not an overt difference but there is some sort of hard to explain change in how the limb feels. Mine feels light, airy and just different than the rest of my body. What is the referendum on SFN, feeling and ALS?
What is the general thinking on a dirty EMG followed by clean?
Thank you in advance!