Zaphoon
Extremely helpful member
- Joined
- Aug 2, 2008
- Messages
- 2,857
- Reason
- DX UMND/PLS
- Diagnosis
- 08/2011
- Country
- US
- State
- Missouri
- City
- Springfield
I don't know what it is with the Wizard of Oz stuff today but you just have to love that fantasy!
Boy, this was an odd visit (if ever there was). Of course, I had to go in there looking my best and behaving myself, funky feet and all. We did the strength test, the sober test (walking in a straight line in baby steps), the ballerina test (walking on tippy-toes) and reflex test. Passed them all with an impressive ballet, I might add. (sigh)
He had a Physical Therapist come in and look at my shoulders because he (the neuro) wants me to start therapy on them. She (the therapist) came in and was taken back by what she saw (so was I!). My right shoulder we've known for a while has been toast but now, the left shoulder is worse than the right. How did that happen:?:
The PT said, "Before any therapy is tried, we need to know the underlying cause of why you have such poor and limitted movement/mobility in your arms and shoulders." (ahem...)
So, she recommended that I see my GP who is to refer me to an orthopedist who will probably start the whole circle around again and I'll wind up back in my local neurologist office who originally gave me a diagnosed of suspected MND.
I did ask about the constant cramping and fascics. His answer was he didn't know the cause of them. Okay... We did talk about Quinine but he was really against it. Shucks! If the doc is against it, so am I. (My mamma taught me that.)
I showed him my funky feet and voiced my concerns about them taking on a new shape. Thats as far as that went... my diatribe.:smile:
Today there was no NCV or EMG because the good and knowledgeable doctor (good news here) doesn't think my problems are neurological in nature. However, having said that, he does want to follow up and set an appointment for me in May. Why? Oh, I know why! Because he knows I'll have gone full circle by then!:idea:
The bottom line: Its anyone's guess but I do feel better with the Dr. thinking its probably not a neuro thing.
Now I'm left with the question as to what to do with my diagnosed line in my signature area. How about, "Still In Kansas" or "Left In Oz":smile:
My wife is at work so, you guys are among the first to know of my big adventure for the day! It is fun and indeed a pleasure to be in the company of such fine folk! My saga continues as I kind of figured it might but this is good. Leave me in Oz and I'll enjoy the company of the merriest of Munchkins!
Zaphoon
Boy, this was an odd visit (if ever there was). Of course, I had to go in there looking my best and behaving myself, funky feet and all. We did the strength test, the sober test (walking in a straight line in baby steps), the ballerina test (walking on tippy-toes) and reflex test. Passed them all with an impressive ballet, I might add. (sigh)
He had a Physical Therapist come in and look at my shoulders because he (the neuro) wants me to start therapy on them. She (the therapist) came in and was taken back by what she saw (so was I!). My right shoulder we've known for a while has been toast but now, the left shoulder is worse than the right. How did that happen:?:
The PT said, "Before any therapy is tried, we need to know the underlying cause of why you have such poor and limitted movement/mobility in your arms and shoulders." (ahem...)
So, she recommended that I see my GP who is to refer me to an orthopedist who will probably start the whole circle around again and I'll wind up back in my local neurologist office who originally gave me a diagnosed of suspected MND.
I did ask about the constant cramping and fascics. His answer was he didn't know the cause of them. Okay... We did talk about Quinine but he was really against it. Shucks! If the doc is against it, so am I. (My mamma taught me that.)
I showed him my funky feet and voiced my concerns about them taking on a new shape. Thats as far as that went... my diatribe.:smile:
Today there was no NCV or EMG because the good and knowledgeable doctor (good news here) doesn't think my problems are neurological in nature. However, having said that, he does want to follow up and set an appointment for me in May. Why? Oh, I know why! Because he knows I'll have gone full circle by then!:idea:
The bottom line: Its anyone's guess but I do feel better with the Dr. thinking its probably not a neuro thing.
Now I'm left with the question as to what to do with my diagnosed line in my signature area. How about, "Still In Kansas" or "Left In Oz":smile:
My wife is at work so, you guys are among the first to know of my big adventure for the day! It is fun and indeed a pleasure to be in the company of such fine folk! My saga continues as I kind of figured it might but this is good. Leave me in Oz and I'll enjoy the company of the merriest of Munchkins!
Zaphoon
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