Diane123
New member
- Joined
- Feb 28, 2018
- Messages
- 3
- Reason
- Friend was DX
- Diagnosis
- 02/2018
- Country
- CA
- State
- Ontario
- City
- Toronto
I’ve been with my partner for almost five years but we don’t live together and don’t plan too.
Only a few months ago I experienced the sudden unexpected death, by fentynol, of my eighteen year old daughter. I’m still trying to cope with that.
My partner has always been unable to be supportive of me, because he is first and foremost being protective of himself. It’s been hard for me to cope whilst in a relationship with someone who doesn’t know how to support me.
During this time of trying to learn how to grieve and continue life after my daughters death, whilst putting my best effort into caring for her surviving sister, my partner had been suffering from loss of control of one hand, constant muscle twitches and a rapidly increasing difficulty speaking.
After a few tests, he was sent to an ALS centre for more tests and yesterday was told that in all likelihood he has ALS.
He has been a mess ever since, why wouldn’t he be? I left work to be with him and held him while he cried, and this morning just got off the phone with him, he’s still in tears.
I am not a crier, I think he would feel better if I was, but I just can’t do it. When my daughter died, if I began crying, my partner would cry more and I’d immediately stop. I don’t know what’s wrong with me.
I feel like a cold hearted and horrible person. My partner has told his best friend but no one else. He refused home physio therapy that the centre wanted to start right away, to avoid having his mother and sister, with whom he lives, know he has this. I don’t believe I can give him the support he needs. I don’t know what to do.
There really isn’t much one can do. I encourage him to get support from his friend.
His friend cried with him on the phone and I did not. He must think me a monster.
Is there anyone out there who has any similar issues with being supportive? Before his diagnosis I felt like I was under so much stress with the loss of my daughter, work and moving that I may just breakdown. Now I’m just numb. He deserves more. Anyone with this diagnosis does. What do I do?
Only a few months ago I experienced the sudden unexpected death, by fentynol, of my eighteen year old daughter. I’m still trying to cope with that.
My partner has always been unable to be supportive of me, because he is first and foremost being protective of himself. It’s been hard for me to cope whilst in a relationship with someone who doesn’t know how to support me.
During this time of trying to learn how to grieve and continue life after my daughters death, whilst putting my best effort into caring for her surviving sister, my partner had been suffering from loss of control of one hand, constant muscle twitches and a rapidly increasing difficulty speaking.
After a few tests, he was sent to an ALS centre for more tests and yesterday was told that in all likelihood he has ALS.
He has been a mess ever since, why wouldn’t he be? I left work to be with him and held him while he cried, and this morning just got off the phone with him, he’s still in tears.
I am not a crier, I think he would feel better if I was, but I just can’t do it. When my daughter died, if I began crying, my partner would cry more and I’d immediately stop. I don’t know what’s wrong with me.
I feel like a cold hearted and horrible person. My partner has told his best friend but no one else. He refused home physio therapy that the centre wanted to start right away, to avoid having his mother and sister, with whom he lives, know he has this. I don’t believe I can give him the support he needs. I don’t know what to do.
There really isn’t much one can do. I encourage him to get support from his friend.
His friend cried with him on the phone and I did not. He must think me a monster.
Is there anyone out there who has any similar issues with being supportive? Before his diagnosis I felt like I was under so much stress with the loss of my daughter, work and moving that I may just breakdown. Now I’m just numb. He deserves more. Anyone with this diagnosis does. What do I do?