Swimmer7
Member
- Joined
- Aug 5, 2014
- Messages
- 13
- Reason
- Learn about ALS
- Country
- IRE
- State
- Dublin
- City
- Dublin
Hey All,
With your experience of symptoms and other people's posts, perhaps you could help shed light on what THREE neurologists cannot, please? I'm worried but not freaking out- life is like a box of chocolates eh?
37 yrs old/Male
Symptom onset:
9 months ago- mild non-specific tremor- it isn't debilitating: Ongoing.
6 months ago - Blurred vision, difficult watching fast moving tv/football. 'White Halo' and double vision with subtitles/credits. Stinging eyes: Ongoing.
4 months ago- left leg reluctant to keep up, sharp sole pain, calf cramping, now I can't walk for longer than a few minutes without being in agony. (calf, sometimes hip) I can walk heel to toe in doors, but outdoors (bigger steps), I carry my leg as gracefully as possible but not with a proper walking gait. Leg feels heavy after exertion but improves with rest. Leg is usually sore, 'disconnected feeling': Ongoing and debilitating.
2 months ago- left arm is weak, can't lift heavy items without disabling it for a while (recovers with time). The arm, hand and fingers have less dexterity than my right side, it almost feels floppy but can easily do small things (carry cups, open doors, drive, typing on a computer . The arm always feels weaker and 'disconnected'.
Neuro Visits:
7 Months ago- clean neuro exam/clean brain MRI/clean bloods
2 months ago - clean neuro exam, no follow up recommended.
2 weeks ago- Left arm brachial reflex absent, left hand noticeably weaker than right on examination (first time this happened) as identified by neuro. Right side fine.
NCS: Left tibia: 13 Right Tibia: 17 (Whatever those scores mean)
EMG: Clean upper and lower.
So it's only in the last few weeks that clinically on examination anything odd has popped up. I've had leg pain since March/April and no sign of Atrophy (i'm measuring my calf/thighs to see if they stay the same and they have)- so on the basis of the other posts here, I'm going to assume my leg pain and walking difficulty is not ALS since the EMG was clean and symptoms were present.
Can you guys/gals relate to the above regarding MND or any illness? My neuro doesn't feel the need to review me any further yet my daily life is hampered by this relatively new arm weakness and the fact that I can't walk far without my leg getting tired and hot. HELP?! Thank you for your time.
Best wishes,
H.
With your experience of symptoms and other people's posts, perhaps you could help shed light on what THREE neurologists cannot, please? I'm worried but not freaking out- life is like a box of chocolates eh?
37 yrs old/Male
Symptom onset:
9 months ago- mild non-specific tremor- it isn't debilitating: Ongoing.
6 months ago - Blurred vision, difficult watching fast moving tv/football. 'White Halo' and double vision with subtitles/credits. Stinging eyes: Ongoing.
4 months ago- left leg reluctant to keep up, sharp sole pain, calf cramping, now I can't walk for longer than a few minutes without being in agony. (calf, sometimes hip) I can walk heel to toe in doors, but outdoors (bigger steps), I carry my leg as gracefully as possible but not with a proper walking gait. Leg feels heavy after exertion but improves with rest. Leg is usually sore, 'disconnected feeling': Ongoing and debilitating.
2 months ago- left arm is weak, can't lift heavy items without disabling it for a while (recovers with time). The arm, hand and fingers have less dexterity than my right side, it almost feels floppy but can easily do small things (carry cups, open doors, drive, typing on a computer . The arm always feels weaker and 'disconnected'.
Neuro Visits:
7 Months ago- clean neuro exam/clean brain MRI/clean bloods
2 months ago - clean neuro exam, no follow up recommended.
2 weeks ago- Left arm brachial reflex absent, left hand noticeably weaker than right on examination (first time this happened) as identified by neuro. Right side fine.
NCS: Left tibia: 13 Right Tibia: 17 (Whatever those scores mean)
EMG: Clean upper and lower.
So it's only in the last few weeks that clinically on examination anything odd has popped up. I've had leg pain since March/April and no sign of Atrophy (i'm measuring my calf/thighs to see if they stay the same and they have)- so on the basis of the other posts here, I'm going to assume my leg pain and walking difficulty is not ALS since the EMG was clean and symptoms were present.
Can you guys/gals relate to the above regarding MND or any illness? My neuro doesn't feel the need to review me any further yet my daily life is hampered by this relatively new arm weakness and the fact that I can't walk far without my leg getting tired and hot. HELP?! Thank you for your time.
Best wishes,
H.