Mom is angry with me that I didn't tell her that I was sick, that according to her, I "hid" this situation from her. I didn't say that I was going to the doctors, that I was doing tests, that I had an MRI.
I had a very hard last year - I had two serious car accidents (not my fault) - that's why these spinal resonances were so important, fortunately nothing bad happens. My mother's sister had a serious operation because she also had an accident - I wanted to spare my mother another stress related to visits, diagnoses (at the beginning the doctors were sure that I had MS). It hasn't been an easy year - unfortunately my mum saw our first car accident with her own eyes, when we were squashed in a sandwich between two huge off-road vehicles. Mom and dad were in the car practically right behind us. I wanted to spare them all the stress.
I am under the care of a psychiatrist. I take psychiatric drugs - antidepressants - duloxetine. I am also prescribed pregabalin.
I didn't make up the diagnosis of MND myself - I really wouldn't want to.
In Poland, very few neurologists specialize in neuromuscular diseases. We do not have any center that deals with this type of diseases. However, we do have centers that deal with the treatment and diagnosis of MS - in such a center they said that if the MRI of the head and spinal cord came out clean, there would be 99% no MS (of course, to be sure, in six months they advised to repeat the MRI of the head and spinal cord in the episode cervical).
- MRI of the head, spinal canal in the cervical and thoracic sections - clean, without any demyelinating changes, no tumor, no symptoms that would indicate a stroke
- ENG / EMG (EMG done only in the quadriceps femoris muscle) clean, no signs of denervation
- EEG clear
- Lyme disease ruled out, B12, vitamin D3, iron levels normal, CK levels normal
- in the neurological examination, pyramidal syndrome (damage to the upper motoneuron) - increased, but symmetrical deep reflexes, pathological symptoms (Babinsky, Hoffmann, Rossolimo, Oppenhaim) retardation of the right limbs (upper and lower) - pyramidal drift, muscle weakness on the right side (arm and leg), spasticity