sfcharm917
New member
- Joined
- Aug 19, 2017
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
I am new here, still trying to navigate this forum. I am interested in hearing from anyone diagnosed with ALS after back surgery. I have had four spinal surgeries and understand that over 50% of people who have Cervical spinal surgery end up with ALS. I have been evaluated twice in the last ten years for it and both times I was told I didn't have it.
It's happening again but this time, I am having major symptoms that I did not have before. Trouble swallowing, drop foot. The other times I had body wide fasciculations. I was found to have lyme disease and treated with IV Rocephin and the twitching ended but not for about a year. I do have twitching now but not body wide. I do have wasting all over. Mostly my feet, legs. I have weakness today that I never had previously.
I live in San Francisco and will be evaluated at the ALS clinic at UCSF and the ALS clinic at Sutter Health. I have been to both. I am quite worried as I have four siblings who all have had back surgeries and suffer from the similar symptoms. I would appreciate it if you would let me know if you have had any back surgery. I've had cervical and lumbar surgeries.
Thank you and I look forward to being here. I am just noticing that I did join here back in 2017. I wonder if the moderator would let me know if I could look back on my previous posts for information I may have forgotten. Thank you.
Barb
It's happening again but this time, I am having major symptoms that I did not have before. Trouble swallowing, drop foot. The other times I had body wide fasciculations. I was found to have lyme disease and treated with IV Rocephin and the twitching ended but not for about a year. I do have twitching now but not body wide. I do have wasting all over. Mostly my feet, legs. I have weakness today that I never had previously.
I live in San Francisco and will be evaluated at the ALS clinic at UCSF and the ALS clinic at Sutter Health. I have been to both. I am quite worried as I have four siblings who all have had back surgeries and suffer from the similar symptoms. I would appreciate it if you would let me know if you have had any back surgery. I've had cervical and lumbar surgeries.
Thank you and I look forward to being here. I am just noticing that I did join here back in 2017. I wonder if the moderator would let me know if I could look back on my previous posts for information I may have forgotten. Thank you.
Barb
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