My current progression is slow, so I have had a lot of time to think about this topic.
I was told early on that I should get a feeding tube. I was given a specific weight at which I should stop procrastinating and act! I have managed to keep my weight above that magical number.
But, it has been an easy decision for me to decide that I will get a feeding tube when the time comes. Here are some factors I considered.
1. I have a god daughter who has had a feeding tube for 10 years. It is amazingly easy to manage and does not interfere with her life. That first-hand experience has shown me that a feeding tube is not something to be feared.
2. A feeding tube can be removed if I change my mind. The decision to get one does not have to be a final decision.
3. Once the feeding tube is placed, I still don't have to use it. It is my decision on when to use it and how much sustenance to take through it.
3. I want to have the feeding tube so that I can take "oral" medications and so that I can stay hydrated, even if I decide to deny nutrition via the feeding tube. I have read too many stories of folks that did not get a feeding tube with the consequence that their last weeks were miserable. Without a feeding tube, they were unable to take medication and unable to stay hydrated.
For me, getting a feeding tube via interventional radiology is an easy decision. I have decided to do so when the time comes. The time has not yet come for me. I have swallowing difficulties, but mine can be managed by being careful about the foods/liquids I consume and how I swallow. It sounds like your swallowing is worse than mine.
Steve