I don't know much about the details of the study, but I originally inquired soley about the study. I was told it did exist but that the doctor hand picked the participants and that he was very selective.
I have thought about my condition and how much suffering I wanted to accept and also put my family through. I decided that I do not want to extend the poor quality of life that it appears I would have if the progression of my bulbar ALS continues. If my ALS were slow moving in my hands or feet, I think this would be a more viable option.
I also think that the cost is high if you are only going to gain a short time. If insurance were picking up the cost, it appears to be a better way to go than a ventilator. One day I believe DPS will be covered and preferred by all over the vent. I can't believe that it hasn't gained more acceptance already.
