billybob
Active member
- Joined
- Jan 18, 2016
- Messages
- 32
- Reason
- PALS
- Diagnosis
- 09/2017
- Country
- US
- State
- FL
- City
- The Villages
Hello all. I'm currently using non-invasive Trilogy and Cough Assist devices, and I'm scheduled for PEG surgery on August 9. At my PEG consult yeterday, the doctor asked me if I had heard of diaphragm pacing system that's sometimes considered as non-invasive devices become less effective. My understanding is this would stimulate the diaphragm and possibly delay invasive ventilation. I checked into it a bit online, and even though it was approved by the FDA in 2011, the results for ALS patients have been mixed. Has anyone had any experience with this system?:?