sisgldnhr
Distinguished member
- Joined
- Feb 2, 2008
- Messages
- 130
- Reason
- CALS
- Diagnosis
- 03/2008
- Country
- US
- State
- OHio
- City
- NW
Hi,
My husband has been ill since February of 07. At first they thought he had cancer of the stomach and colon only to find (Thank God!) that he had a bacterial infection! that was taken care of with meds. He had gotten down to 115 lbs from 155. He was gaining weight back, he got up up to 126 lbs and we thought he was on his way to getting better.
But looking back......we now see that while he had the infection problems, other problems were present as well. Weakness primarily in his left arm and pain in his neck. He started going to a chiropractor for that. After several treatments the chiro told us that something else was wrong. He sent us to the first Neurologist. He did muscle/nerve condition tests then sent us on to a larger medical facility. He told us that he was not qualified to diagnosis what he thought my husband had. So we got to the large facility and have the nerve/muscle conduction tests done again. This Neuro told us that its not ALS but it is something and that my husband has had it for awhile. So he sent us on to the Neuro-surgeon for the biopsies. Which will be done on Monday, Feb. 4th. This fellow told us that he thinks that it is ALS.
My husband (Don) has no reflexes in either arms, either ankles & one knee. He has cramping in his arms & legs...day & night. He has been on oxygen since Dec 27th. His oxygen level was down to 67%. Our family Dr. told us anything below 90% is dangerous. He has muscles twitching in his arms but he doesn't feel it. It was also noted at the surgeon meet & greet that his mouth is full of salvia now.
At this point..... we just don't know what to do or think. He is also down to 121 lbs.
I don't know how long the biopsy results take?
Any feedback would be greatly appreciated,
Sisgldnhr
My husband has been ill since February of 07. At first they thought he had cancer of the stomach and colon only to find (Thank God!) that he had a bacterial infection! that was taken care of with meds. He had gotten down to 115 lbs from 155. He was gaining weight back, he got up up to 126 lbs and we thought he was on his way to getting better.
But looking back......we now see that while he had the infection problems, other problems were present as well. Weakness primarily in his left arm and pain in his neck. He started going to a chiropractor for that. After several treatments the chiro told us that something else was wrong. He sent us to the first Neurologist. He did muscle/nerve condition tests then sent us on to a larger medical facility. He told us that he was not qualified to diagnosis what he thought my husband had. So we got to the large facility and have the nerve/muscle conduction tests done again. This Neuro told us that its not ALS but it is something and that my husband has had it for awhile. So he sent us on to the Neuro-surgeon for the biopsies. Which will be done on Monday, Feb. 4th. This fellow told us that he thinks that it is ALS.
My husband (Don) has no reflexes in either arms, either ankles & one knee. He has cramping in his arms & legs...day & night. He has been on oxygen since Dec 27th. His oxygen level was down to 67%. Our family Dr. told us anything below 90% is dangerous. He has muscles twitching in his arms but he doesn't feel it. It was also noted at the surgeon meet & greet that his mouth is full of salvia now.
At this point..... we just don't know what to do or think. He is also down to 121 lbs.
I don't know how long the biopsy results take?
Any feedback would be greatly appreciated,
Sisgldnhr