AlDowns
Active member
- Joined
- Nov 10, 2021
- Messages
- 33
- Reason
- PALS
- Diagnosis
- 12/2021
- Country
- US
- State
- MN
- City
- Lakeville
I was recently seen by my neurologist who setup an appointment to “rule out” ALS. One week later, the department care coordinator changed the appointment to include interviews and assessments by the department chair, a social worker, and PT AND OT specialists.
My current symptoms include weakness in my right arm, atrophy in the right hand and wrist, and recently observed atrophy in the upper quadrant of my right shoulder. I have been seeing an increased or spreading of fasciculation from the right arm, then the left arm and now both shoulders.
It was the conclusion of both my wife and me, that the upcoming appointment is not the rule out ALS, but instead start the “treatment” and counseling for this onset.
Based on our readings, there is no shortage of what seems to be good information regarding this disease, we accept that this is certainly early stages. We have accepted that there will be no timeline available to us until we have a few months of tracking the progression. But we do understand that the progression is linear.
Long post, with no clear question. But looking for feedback on our current observations and circumstance.
My current symptoms include weakness in my right arm, atrophy in the right hand and wrist, and recently observed atrophy in the upper quadrant of my right shoulder. I have been seeing an increased or spreading of fasciculation from the right arm, then the left arm and now both shoulders.
It was the conclusion of both my wife and me, that the upcoming appointment is not the rule out ALS, but instead start the “treatment” and counseling for this onset.
Based on our readings, there is no shortage of what seems to be good information regarding this disease, we accept that this is certainly early stages. We have accepted that there will be no timeline available to us until we have a few months of tracking the progression. But we do understand that the progression is linear.
Long post, with no clear question. But looking for feedback on our current observations and circumstance.