RandomMom
New member
- Joined
- Jan 26, 2019
- Messages
- 8
- Reason
- PALS
- Diagnosis
- 01/2019
- Country
- US
- State
- NJ
- City
- Tabernacle
Hi everyone –
I have been reading the forums daily for a while now, have learned a lot, and feel like I know all of you well and wanted to let you know a little bit more about me.
I posted in the “Could this be ALS” forum a few months back and took the very good advice that I received thee to get a second opinion from my initial ALS diagnosis.
That was in March and I was able to see Dr. Kwan at Temple who has been excellent. He took the time to go over every test I had, ordered more, and confirmed my diagnosis. I am now on riluzole and radicava (finishing my first round of home infusions today).
The bright side of this very difficult situation is that I am progressing very slowly with functional loss limited to my right hand and very little additional progression in the past couple of months beyond fatigue.
I’m 54, married with two adult sons and I work at a University, which turns out to be a great place to be when you are in need of support. With that I’m trying to focus on the good things and not let myself get overwhelmed by the future. I appreciate having this forum as a place to learn from all of you and am happy to share my experiences.
I have been reading the forums daily for a while now, have learned a lot, and feel like I know all of you well and wanted to let you know a little bit more about me.
I posted in the “Could this be ALS” forum a few months back and took the very good advice that I received thee to get a second opinion from my initial ALS diagnosis.
That was in March and I was able to see Dr. Kwan at Temple who has been excellent. He took the time to go over every test I had, ordered more, and confirmed my diagnosis. I am now on riluzole and radicava (finishing my first round of home infusions today).
The bright side of this very difficult situation is that I am progressing very slowly with functional loss limited to my right hand and very little additional progression in the past couple of months beyond fatigue.
I’m 54, married with two adult sons and I work at a University, which turns out to be a great place to be when you are in need of support. With that I’m trying to focus on the good things and not let myself get overwhelmed by the future. I appreciate having this forum as a place to learn from all of you and am happy to share my experiences.