Twinkle
New member
- Joined
- Oct 6, 2018
- Messages
- 9
- Reason
- CALS
- Diagnosis
- 10/2018
- Country
- UK
- State
- Manchester
- City
- Up North
Hello everyone.
My husband of 30 years was diagnosed 3rd October 2018 of Bulbar Onset/ALS. It was a relief for us all to have a diagnosis as we was wondering all sorts what was wrong with him.
He started to talk slowler than usual in January this year, and gradually got worse over the months. His walking started from Feubuary where he walked in a stoop after rising from the settee. Over the months he had to use a walking stick, then crutches, now a Zimmer frame. He can walk around the house using the frame, it's very slow though. He can also walk upstairs with my help behind him, although this is becoming more difficult.
We're already receiving lots of help from professionals like District Nurses, OT, Physio, Matron, Speech Therapist, Dietician and our own Dr and lots of mobility aids. We're waiting of our local authority to assess our house for either stair lift & wet room, lift through to upstairs & wet room, or a house extension. I'm hoping for a house extension, but this won't be upto us.
My husband has been depressed since his voice started to decline as he's always been a talker.
Our kids are all upset and my husband refuses to be seen by anyone over than myself and 3 kids. ×
My husband of 30 years was diagnosed 3rd October 2018 of Bulbar Onset/ALS. It was a relief for us all to have a diagnosis as we was wondering all sorts what was wrong with him.
He started to talk slowler than usual in January this year, and gradually got worse over the months. His walking started from Feubuary where he walked in a stoop after rising from the settee. Over the months he had to use a walking stick, then crutches, now a Zimmer frame. He can walk around the house using the frame, it's very slow though. He can also walk upstairs with my help behind him, although this is becoming more difficult.
We're already receiving lots of help from professionals like District Nurses, OT, Physio, Matron, Speech Therapist, Dietician and our own Dr and lots of mobility aids. We're waiting of our local authority to assess our house for either stair lift & wet room, lift through to upstairs & wet room, or a house extension. I'm hoping for a house extension, but this won't be upto us.
My husband has been depressed since his voice started to decline as he's always been a talker.
Our kids are all upset and my husband refuses to be seen by anyone over than myself and 3 kids. ×
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