diktatura1941
New member
- Joined
- Oct 31, 2021
- Messages
- 1
- Reason
- PALS
- Diagnosis
- 10/2021
- Country
- LT
- City
- Kaunas
Hello,
On Friday i was diagnosed with ALS. I gues i won a one million dollar lottery, as it is written in this forum that young people to have als a chance is one in a million.
The most what's angry is that i was banned in this forhm three years ago! How does it started?? After very strange flu that i was sick three weeks, I began to twich everythere in my body tongue face etc. and i had clean emg i wrote really a lot posts in this forum then and i was banned! I forgot about ALS because i was too young only 29 years old female, my emg was clean and again i was diagnosed with bfsš.
I always knew that something isn't right with me. I have done tons of tests everything was ok. So i lived with my ill body and stopped going to doctors. I guess now that my als was so slow progression that i only felt twitches not weakness.
I created a family and gave a birth to a beautiful boy named David during that three years but after delivery my strength was decreasing with every day also i had two surgeries that also worsened my health so bad. I guess those things accelerated als progression, i began limp with my right leg and slurring my words. I cried inside because i knew that the hell was back. I have done this month two emg's and they show so many bad things and i was given als diagnosis.
The most ironic thing that everyday what i will fail to do my son (he is now a year old) will learn to do and i will leave him so young that he won't remember me ( that's so sad.
My situation is really not traditional. I guess who is diagnosed with bfs have a chance later to hear an als diagnosis especialy if als i slow progressing.
Sorry for bad english and thanks for reading.
On Friday i was diagnosed with ALS. I gues i won a one million dollar lottery, as it is written in this forum that young people to have als a chance is one in a million.
The most what's angry is that i was banned in this forhm three years ago! How does it started?? After very strange flu that i was sick three weeks, I began to twich everythere in my body tongue face etc. and i had clean emg i wrote really a lot posts in this forum then and i was banned! I forgot about ALS because i was too young only 29 years old female, my emg was clean and again i was diagnosed with bfsš.
I always knew that something isn't right with me. I have done tons of tests everything was ok. So i lived with my ill body and stopped going to doctors. I guess now that my als was so slow progression that i only felt twitches not weakness.
I created a family and gave a birth to a beautiful boy named David during that three years but after delivery my strength was decreasing with every day also i had two surgeries that also worsened my health so bad. I guess those things accelerated als progression, i began limp with my right leg and slurring my words. I cried inside because i knew that the hell was back. I have done this month two emg's and they show so many bad things and i was given als diagnosis.
The most ironic thing that everyday what i will fail to do my son (he is now a year old) will learn to do and i will leave him so young that he won't remember me ( that's so sad.
My situation is really not traditional. I guess who is diagnosed with bfs have a chance later to hear an als diagnosis especialy if als i slow progressing.
Sorry for bad english and thanks for reading.