KateMMA
Active member
- Joined
- Apr 30, 2019
- Messages
- 30
- Reason
- DX MND
- Diagnosis
- 02/2019
- Country
- US
- State
- CA
- City
- Oceanside
Hello! I was recently diagnosed with monomelic amyotrophy (Hirayama's Disease). Has anyone else received this diagnosis? I'd love to chat since I can't find a lot of information about it.
I am in the military and they are putting me on a board that will determine whether or not I will be able to continue serving. I am going through the VA process and they want to know an 'analogous disease' since it is not listed in their regulations because it is so rare. If anyone has any thoughts on this, I'd really appreciate it.
I am in the military and they are putting me on a board that will determine whether or not I will be able to continue serving. I am going through the VA process and they want to know an 'analogous disease' since it is not listed in their regulations because it is so rare. If anyone has any thoughts on this, I'd really appreciate it.