Have you been tested for neuromyotonia (aka Isaac's Syndrome)? If not I think you should. You can read more about it here:
Neuromyotonia - Wikipedia, the free encyclopedia
This is what I have. At first they made a diagnosis of mnd but later they discovered it was Isaac's Syndrome.
Mom thought be ni gn cra mp fa scic u la tion on page 1. Ian con fir med that was the first di ag no sis on po st 24. Hopefully that will be his final di ag no sis.