PeterKh
New member
- Joined
- Dec 13, 2024
- Messages
- 2
- Reason
- Loved one DX
- Diagnosis
- 00/0000
- Country
- SK
Hello everyone,
My father-in-law (63) was diagnosed with ALS this February. But the doctors said it has quite atypical progress and it's very slow. Symptoms started about 6 years ago.
Little overview about his condition and symptoms:
- Muscle twitching and weakness on both legs and arms (for 6 years now).
- No muscle twitching on neck or head area.
- No swallowing issues.
- No speech issues.
- He has muscle pain when there is a sudden barometric pressure change outside.
- Visible weight loss, he lost approx. 10 kg (22 lb) of weight this year.
- There's some visible muscle atrophy.
- He had serious body inflammation during this summer that was cured with antibiotics. It's good now but since that time he has shortness of breath.
- He was also diagnosed positive to borreliosis about 3 years ago.
- He is still 100% mobile. No movement issues except sometimes he has stiff tendons on fingers, but the rehab helps him.
He went to see a neurologist yesterday for a regular check and he told him that he is in a very good condition considering the ALS diagnosis.
Honestly. At first I thought it is a misdiagnosis but I don't want to question medical authorities.
My question is, does anyone has the experience of similar slow progress or symptoms like this?
Thank you in advance.
My father-in-law (63) was diagnosed with ALS this February. But the doctors said it has quite atypical progress and it's very slow. Symptoms started about 6 years ago.
Little overview about his condition and symptoms:
- Muscle twitching and weakness on both legs and arms (for 6 years now).
- No muscle twitching on neck or head area.
- No swallowing issues.
- No speech issues.
- He has muscle pain when there is a sudden barometric pressure change outside.
- Visible weight loss, he lost approx. 10 kg (22 lb) of weight this year.
- There's some visible muscle atrophy.
- He had serious body inflammation during this summer that was cured with antibiotics. It's good now but since that time he has shortness of breath.
- He was also diagnosed positive to borreliosis about 3 years ago.
- He is still 100% mobile. No movement issues except sometimes he has stiff tendons on fingers, but the rehab helps him.
He went to see a neurologist yesterday for a regular check and he told him that he is in a very good condition considering the ALS diagnosis.
Honestly. At first I thought it is a misdiagnosis but I don't want to question medical authorities.
My question is, does anyone has the experience of similar slow progress or symptoms like this?
Thank you in advance.