alissamw
New member
- Joined
- Oct 27, 2022
- Messages
- 5
- Reason
- PALS
- Diagnosis
- 09/2022
- Country
- US
Hi!
I was diagnosed with a motor neuron disease in July 2022 and ALS in September. I live in nj with my husband and 5 dogs
I am 41. I had been a real active person. Now, I struggle to walk with 2 afos and a cane. My symptoms started in August 2021. Fasciculations then cramping then falling and now weakness. I'm waiting for the results of genetic testing
I am currently working and have dropped down from 40 hours to 32. I have private insurance right now. Does anyone know if I should attempt to keep this insurance and pay for cobra or instead, get on Medicare?
My copay for riluzole is 15$. I am in the process of getting radicava. I am waiting on a prior authorization before I can find out the price per month.
Also, does anyone know how big a walk- in shower has to be to accommodate a wheelchair.?
I was diagnosed with a motor neuron disease in July 2022 and ALS in September. I live in nj with my husband and 5 dogs
I am 41. I had been a real active person. Now, I struggle to walk with 2 afos and a cane. My symptoms started in August 2021. Fasciculations then cramping then falling and now weakness. I'm waiting for the results of genetic testing
I am currently working and have dropped down from 40 hours to 32. I have private insurance right now. Does anyone know if I should attempt to keep this insurance and pay for cobra or instead, get on Medicare?
My copay for riluzole is 15$. I am in the process of getting radicava. I am waiting on a prior authorization before I can find out the price per month.
Also, does anyone know how big a walk- in shower has to be to accommodate a wheelchair.?