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MyALS-CURE

New member
Joined
Sep 30, 2007
Messages
1
Reason
PALS
Diagnosis
02/1995
Country
US
State
fl
City
st pete
I was diagnosed with ALS over 12 years ago. I had this diagnosis confirmed with a second and third opinion. Had dozens of tests including: nerve conduction, MRI's, CATSCANS, X-rays, mylograms, had tissue removed from my leg sent to University of The Carolinas, etc. I was given a year to a year and a half to live at the time of my diagnosis, and am currently in perfect health.
Here's the wierd part of my story. MY maternal Grandfather and great grandfather both died from ALS. I don't know why it never occured to me before, but I have been thinking that maybe my good fortune could possibly be linked to them both having the disease. Maybe I have inherited some sort of immunity to the disease, and if so, possibly my blood could be made into some sort of experimental serum. I know the feeling of utter helplessness that I experienced when first diagnosed. I tried every holistic product known to man, I purposely got stung by bee's and wasps, and took mega doses of vitamins, along with prescribed medication for the fasiculations and muscle weakness I had. If someone like me had been around and offered me some of their blood, I woulld have done it without hesitation.
If anyone here knows anyone in the scientific community who would like to look into this, I would be willing to help out any way I could.

Thanks,

George
 

kathmc

Active member
Joined
Jun 9, 2006
Messages
51
Reason
PALS
Diagnosis
02/2006
Country
US
State
ky
City
lexington
ALS 12 years ago-healthy today

Hey George,

It's a interesting note you write, sounds unbelievable. You left out when & how things turned around. What did your neurologist say about your turn around? A friend of mine beat pancreatic cancer & he is tested by researchers constantly & also featured in person at medical conferences for those specialists. Your neurologist should be getting you involved in ALS research like Mike's cancer Dr. has done.

I am glad you are well now.

kath
Lexington, ky.
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi George. I'm surprised your Neuro is not parading you around at Neuro's conferences. We all know how doc's like a good success story. Amazing that someone isn't taking credit for your 'cure'. 12 years seems like a long time before the word is getting out. Have you contacted the newspapers in St. Pete's. I'm sure they'd be interested.
 
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