Diagnosed pma

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
8,911
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
There may not be anyone currently with true PMA on this board. I can’t think of anyone who identifies as such. Fairly recently ( in the last year of less) there was someone with PMA on patientslikeme who had a PMA thread in the ALS subforum. You might like to join there and find it. If he is still around I am sure he would answer. If he isn’t you might find it helpful to read at least
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
3,755
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
City
Southern Oregon
Pure PMA is rare. My neuromuscular doctor told me a lot of people initially felt to have PMA are later reclassified as ALS. Apparently there was a study of people who died from PMA and many of them had findings of ALS on autopsy.

I have ALS which started out as lower motor neuron dominate, but eventually I developed jaw clonus after 2 years. I still have very little spasticity outside of my jaws. Everyone is different.
 

araksya1957

Member
Joined
Jul 18, 2020
Messages
15
Reason
PALS
Diagnosis
06/2015
Country
US
State
CA
City
North Hollywood
Hello l was wondering could be pma wihout twitching , crump and begins hip girdle and tigh very very simmetrical, and weakneses and atrophy togeter, stil walking with walker after 7 years from simptom onset, only legs. Thank you
 

araksya1957

Member
Joined
Jul 18, 2020
Messages
15
Reason
PALS
Diagnosis
06/2015
Country
US
State
CA
City
North Hollywood
I forget begins with proximal weakneses, not jumping ,not runing, raising from low chair, go up stairs,difficulty standing from square position , after 1 year developed distal weakneses, foot drop. All proximal weakneses was very simmetrical.
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
3,755
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
City
Southern Oregon
Twitching is not a requirement for the diagnosis of either PMA or ALS. So to answer your question, PMA is possible without twitching.

In terms of your other symptoms, they are not specific to any particular condition. Have you talked to your neurologist about your concerns?

What did your EMG show?
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
8,460
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Please do not post the same question again. There will be no new answers. But we asked for a copy of your EMG to try and help you.

Best,
Laurie
 

araksya1957

Member
Joined
Jul 18, 2020
Messages
15
Reason
PALS
Diagnosis
06/2015
Country
US
State
CA
City
North Hollywood
Hello to everyone, lam may be annoying ,you want my emg result,in conclusion writen,in lower extremities showed widespread active denervation potentials in multiple myotomes and paraspinal levels, including the thoracic ones.the findings are consistent with polyradycoulopathy or motor neuron disease.
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
8,460
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
Can you please post the full report with the table of findings? There is a critical difference between polyradiculopathy and motor neuron disease, and the EMG can normally differentiate these fairly conclusively.
 

araksya1957

Member
Joined
Jul 18, 2020
Messages
15
Reason
PALS
Diagnosis
06/2015
Country
US
State
CA
City
North Hollywood
I read that motor poly radyculapathy begins simmetrical,in hip and thigh muscles, proximal, my symptoms begins simmetricaly,
 

KarenNWendyn

Forum Supporter
Moderator
Joined
Jul 29, 2017
Messages
3,755
Reason
PALS
Diagnosis
07/2017
Country
US
State
OR
City
Southern Oregon
The positive sharp waves in many muscles is worrisome for ALS but the normal insertional activity goes against it. You need to discuss the findings and your questions with your doctors.
 

araksya1957

Member
Joined
Jul 18, 2020
Messages
15
Reason
PALS
Diagnosis
06/2015
Country
US
State
CA
City
North Hollywood
I forget my legs already 2,3 years swelling ankles, sole of footlower part of legs , lam walking with walker slowly ,not paralysed. I know that if legs or hands paralyzed could be sweling.
 

araksya1957

Member
Joined
Jul 18, 2020
Messages
15
Reason
PALS
Diagnosis
06/2015
Country
US
State
CA
City
North Hollywood
Hello nobady answer me, what you think about my emg, l don't have fasiculation,, but fibs and psw is not normal, and insertion activity is normal what that mean. I having veird sensation sole of my feet, like something there,like sweling sansation.sometimes l having burning sensation my lower legs.l said my neurologist he didn't say anythig.
 

Nikki J

Moderator
Joined
Mar 22, 2012
Messages
8,911
Reason
PALS
Diagnosis
04/2014
Country
US
State
MA
City
Boston
Karen DID answer you. It isn’t classic ALS emg so we don’t know. You need to talk to your doctor if they are a neuromuscular specialist. If they are not find one.
 

lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
8,460
Reason
Lost a loved one
Diagnosis
00/0000
Country
US
State
WA
City
Seattle
There are several good ALS clinics around LA, including Cedars-Sinai, USC, UCLA and Loma Linda.
 
Top