Hello again. It's obvious that you are scared that you might have ALS. I don't think lurking and posting on forums is going to help. I think it will make you more anxious.
Please see a neuro and end the self diagnosis and questions related to ALS and PLS. You live near an excellent ALS facility and you will get all your questions answered there.
I'm so sorry you lost your dad and uncle to ALS.
Please listen to Kim. If you can get an appointment with Dr Benatar at U Miami he will give you honest expert kind feedback. He is a world known expert in FALS and has been studying genetic carriers for years. I don’t know if he will see you if you have not been seen by a doctor and found to have worrisome abnormalities on exam but you can call and try.
You may not even have your family mutation. If your symptoms are not ALS you are letting FALS steal your life
unnecessarily
Congratulations on your impending remarriage!
I am sure you are busy with that but you might call now if you have the time. There is usually a wait to be seen for people like him. If they ask about insurance you can tell them you will have xyz starting next week ( presumably you know or can find out this). They might not ask. My clinic made the appointment and gave me a number to call and register with my insurance information. I just had to do it and get a referral any time before my visit. My visit was almost 2 months after the initial call and I already had an abnormal EMG.