Learning89
New member
- Joined
- Dec 11, 2024
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- US
Hello all,
I am a 35 (m) - former athlete in college. I live a very healthy lifestyle with an amazing wife and two beautiful children.
I’ve had a very hard and emotional last month. I’ll present my symptoms below - hoping to get some clarify.
Todays date is 12/15 and symptoms started on 11/17 (roughly one month ago)
I woke up 11/17 with tingling in both feet and both hands. I thought it was just the way I slept. As the day went one it was on and off and then I felt numbness on my face (majority was left sided). I decided to go an urgent care and they sent me to an ER (possible stroke symptoms).
@ the ER (1st visit) 11/17 - they ran all the tests, mri (spine head / w contrast ) , CS. They didn’t find anything - I was ultimately admitted and discharged the next day with no answers. They simply said “we don’t know, could be an injection,
Nerve damage”
Two days later the symptoms came back. But this time I had more symptoms:
Very weak, brain fog, no appetite, sharp pain in lower abdomen, hands and feet feel heavy, tightness / soreness in forearms and calves, weird dull headache in back
I then saw a Neurologist on 11/21: He examined me and my symptoms and said it could be “AIDP, and that he wanted to admit me back to the hospital for more testing and IVIG treatment”
I spent another night in the hospital and was discharged the next afternoon after two infusions of IVIG.
When I got home on 11/24: I had a multitude of new symptoms which lead me to this forum.
Sunday 11/24
Arms and forearms weak
Knee and quads hurt
Lower back pain
Brain fog / out if it
Monday 11/25
Am Headache
Am left forearm tight
Slight brain fog
Very Tired
# 2 a lot
Sick / nausea feeling
Tuesday 11/26
Much better
Slight tired
Woke up 11 pm dripping sweats
Big tingles at night
Wednesday 11/27
Little tingle am
Right forearm pain - deep in muscle / tightness
Light Brain fog
Dehydration feeling….
Weird sensation back of throat/ hoarseness
Tired
Thursday (thanksgiving) 11/28
Very Tired / weak
Nauseous feeling
Friday 11/29
Slight improvement
Tightness in chest
Slight Brian fog
Saturday 11/30
Slight improvement
Right forearm tightness
Slight Brain fog
Sunday 12/1
Slight brain fog
Back of lower head dull tightness
Monday 12/2
Slight brain fog
Tender Lower back skull
PM- improvement of brain fog
Tuesday 12/3
Great
PM tingling right foot ankle and R forearm
Wednesday 12/4
R forearm tight
Light weakness
Weird shaking or tremors / shaking R forearm
Thursday 12/5
R forearm tight
Stiff hands more R Side
Friday 12/6
R forearm tight
Saturday 12/7
Both quads (soreness/ cramp feeling)
R & L forearm tight & stiff hands
Sunday 12/8
R & L forearm tight & stiff hands (right is worse)
Woke up w headache
Slight R hand tremors
Weakness / sluggish / tired (morning and afternoon)
L eye pressure (squeezing feel)
Leg twitching - not sure when started
Monday 12/9
R & L forearm tight & stiff hands (right is worse)
Tremors both hands
Right pinky and ring finger feel numb and right forearm (massaged and felt slightly better)
Left side face numb (am)
Fatigue / sluggish / sick feeling (morning & PM)
Weird neck pain in back
Headache (top of head)
L eye pressure (squeezing feel)
Tuesday 12/10
Left eye pressure
R & L forearm tight & stiff hands (right is worse)
Bad R forearm pain
Wednesday 12/11
R forearm very tight & stiff hand bad
Right bicep (pm) cramping
Thursday 12/12
R forearm very tight & stiff hand bad
Right bicep (pm) cramping
Friday 12/13
R forearm very tight & stiff hand bad
R Hand Tremors
Started Gabapentin (PM)
Saturday 12/14
Less tight R Forearm than yesterday/ less stiff hand (R)
Lots of pee
Feeling better around 3pm
5:30 pm Major Brain fog at party (felt dizzy)

Thanks for keeping up with this post. My biggest concerns are now the intense pressure/ cramp/ tightness deep in my right forearm. On top of that my right hand feels very tight and sluggish- strength is fine but it’s hard to move finger mobility compared to the left hand. And last night at a holiday party I felt like I was going to pass out mid conversation.
I saw my Neurologist on 12/12 (3 days ago) - they did a EMG & Nerve test. At the end of the test the Neurologist said it Is NOT ALS. He does not have a conclusive answer of diagnosis. Leading towards CIDP or MNN
I cannot sleep. I am up all night playing Dr. Google - my anxiety is through the roof.
Please
let me know what you All
Think. Thank you
I am a 35 (m) - former athlete in college. I live a very healthy lifestyle with an amazing wife and two beautiful children.
I’ve had a very hard and emotional last month. I’ll present my symptoms below - hoping to get some clarify.
Todays date is 12/15 and symptoms started on 11/17 (roughly one month ago)
I woke up 11/17 with tingling in both feet and both hands. I thought it was just the way I slept. As the day went one it was on and off and then I felt numbness on my face (majority was left sided). I decided to go an urgent care and they sent me to an ER (possible stroke symptoms).
@ the ER (1st visit) 11/17 - they ran all the tests, mri (spine head / w contrast ) , CS. They didn’t find anything - I was ultimately admitted and discharged the next day with no answers. They simply said “we don’t know, could be an injection,
Nerve damage”
Two days later the symptoms came back. But this time I had more symptoms:
Very weak, brain fog, no appetite, sharp pain in lower abdomen, hands and feet feel heavy, tightness / soreness in forearms and calves, weird dull headache in back
I then saw a Neurologist on 11/21: He examined me and my symptoms and said it could be “AIDP, and that he wanted to admit me back to the hospital for more testing and IVIG treatment”
I spent another night in the hospital and was discharged the next afternoon after two infusions of IVIG.
When I got home on 11/24: I had a multitude of new symptoms which lead me to this forum.
Sunday 11/24
Arms and forearms weak
Knee and quads hurt
Lower back pain
Brain fog / out if it
Monday 11/25
Am Headache
Am left forearm tight
Slight brain fog
Very Tired
# 2 a lot
Sick / nausea feeling
Tuesday 11/26
Much better
Slight tired
Woke up 11 pm dripping sweats
Big tingles at night
Wednesday 11/27
Little tingle am
Right forearm pain - deep in muscle / tightness
Light Brain fog
Dehydration feeling….
Weird sensation back of throat/ hoarseness
Tired
Thursday (thanksgiving) 11/28
Very Tired / weak
Nauseous feeling
Friday 11/29
Slight improvement
Tightness in chest
Slight Brian fog
Saturday 11/30
Slight improvement
Right forearm tightness
Slight Brain fog
Sunday 12/1
Slight brain fog
Back of lower head dull tightness
Monday 12/2
Slight brain fog
Tender Lower back skull
PM- improvement of brain fog
Tuesday 12/3
Great
PM tingling right foot ankle and R forearm
Wednesday 12/4
R forearm tight
Light weakness
Weird shaking or tremors / shaking R forearm
Thursday 12/5
R forearm tight
Stiff hands more R Side
Friday 12/6
R forearm tight
Saturday 12/7
Both quads (soreness/ cramp feeling)
R & L forearm tight & stiff hands
Sunday 12/8
R & L forearm tight & stiff hands (right is worse)
Woke up w headache
Slight R hand tremors
Weakness / sluggish / tired (morning and afternoon)
L eye pressure (squeezing feel)
Leg twitching - not sure when started
Monday 12/9
R & L forearm tight & stiff hands (right is worse)
Tremors both hands
Right pinky and ring finger feel numb and right forearm (massaged and felt slightly better)
Left side face numb (am)
Fatigue / sluggish / sick feeling (morning & PM)
Weird neck pain in back
Headache (top of head)
L eye pressure (squeezing feel)
Tuesday 12/10
Left eye pressure
R & L forearm tight & stiff hands (right is worse)
Bad R forearm pain
Wednesday 12/11
R forearm very tight & stiff hand bad
Right bicep (pm) cramping
Thursday 12/12
R forearm very tight & stiff hand bad
Right bicep (pm) cramping
Friday 12/13
R forearm very tight & stiff hand bad
R Hand Tremors
Started Gabapentin (PM)
Saturday 12/14
Less tight R Forearm than yesterday/ less stiff hand (R)
Lots of pee
Feeling better around 3pm
5:30 pm Major Brain fog at party (felt dizzy)

Thanks for keeping up with this post. My biggest concerns are now the intense pressure/ cramp/ tightness deep in my right forearm. On top of that my right hand feels very tight and sluggish- strength is fine but it’s hard to move finger mobility compared to the left hand. And last night at a holiday party I felt like I was going to pass out mid conversation.
I saw my Neurologist on 12/12 (3 days ago) - they did a EMG & Nerve test. At the end of the test the Neurologist said it Is NOT ALS. He does not have a conclusive answer of diagnosis. Leading towards CIDP or MNN
I cannot sleep. I am up all night playing Dr. Google - my anxiety is through the roof.
Please

Think. Thank you