- Feb 9, 2008
Hey All. I am still fairly new to this site, but I have been reading all the posts for some time now. My husband was diagnosed in March 2008, but they believe he has had ALS for atleast 5 yrs. now. Since January, his health has gone down hill fast. I am completely overwhelmed with this whole "monster". I don't have any time to adjust to one change before another slaps him. Every day is a new challenge. The Dr. called hospice in last week, now I am overwhelmed with all these strangers in and out of my home. After I get him in the bed at night, I sit in the living room in the dark and just cry. I can't bear the fact that I am losing him. When I finally do go to bed, I lie awake most of the night just praying for each breathe to keep coming. He is completely dependant on me as he is pretty much confined to his wheelchair now and I am still trying to work full time. Thankfully, my boss lets me work from home when I can't get a family member to stay for a couple of hours, but I can't stand to be away from him. I am so consumed with him that I am finding it harder and harder to focus on anything else. How am I going to get through this?