- Jun 17, 2007
I've tried to read up on these two terms, and the doctors have been no help. I have had 3 neuros and 7 EMGs. One neuro who was a DO, one ALS specialist, and a team of neuros at the Mayo Clinic just this last September. They all see the same thing in my legs and arms: evidence of reinnervation but no denervation, so they all have said I do not have ALS but probably peripheral neuropathy. My question is does anyone understand how you can have reinnervation without denervation. Does that mean the motor nerves are being damaged but not dying off? There is also dysphagia and reduced pulmonary function involved (FVC went from 73% in September to 58% about 3 weeks ago). I've given up on a diagnosis, but I just want to at least understand what is happening to my motor nerves, and like I said, the doctors do not take the time to explain anything to me. Thanks.