Missgranma
Member
- Joined
- Dec 24, 2019
- Messages
- 15
- Reason
- Loved one DX
- Diagnosis
- 09/2019
- Country
- US
- State
- VA
- City
- Roanoke
My sister has had a fairly fast progressing ALS having been formally diagnosed Sept 2019. Limb onset has given way to inability to speak intelligibly at all and just had a PEG placed this past week due to very poor swallowing, dehydration and weight loss.
My concern is her distress and discomfort with recovering from this minor surgery. She seems so "out of it" and unable to tell us her needs. (Loving husband and full time caregiver and myself and other family).
She is just repeating unintelligible pleas and seems just anxious and depressed unless sedated with oxy and xanax? Is this normal post OP or FTD. She just seems more and more unreachable.
My concern is her distress and discomfort with recovering from this minor surgery. She seems so "out of it" and unable to tell us her needs. (Loving husband and full time caregiver and myself and other family).
She is just repeating unintelligible pleas and seems just anxious and depressed unless sedated with oxy and xanax? Is this normal post OP or FTD. She just seems more and more unreachable.