burnett2112
New member
- Joined
- Aug 17, 2008
- Messages
- 2
- Reason
- CALS
- Diagnosis
- 07/2008
- Country
- US
- State
- PA
- City
- Lancaster
How odd to find myself on this website, yet here I am, getting ready to pour it out.
Last August, my husband and I lost our 5 month old baby, Ryan to Sudden Infant death Syndrome. What are the odds?
Two calender months later, a wire sparked a massive house fire and demolished our house. We had no insurance. What are the odds?
Two weeks ago, my father (who lives with us) was diagnosed with ALS.
What are the odds?
HE has lost the use of his right arm, starting to cramp in his left, leg cramps at night, and his skin is popping all over both arms, upper chest and down to his legs. He has stumbled a few times, but has not fallen. He still drives, although I know he shouldn't. A car accident would just be such a better ending then what we are facing ahead of us. He independantly eats, though it takes him an hour and a half to complete a meal.
I have 4 other (surviving) children and am pregnant again. (on purpose). Being a primary caregiver is an honor, although I am scared to death at what lies ahead.
I really wish the doctors at Hershey Medical Center could give us a time frame on my dads life.
SO my questionis:
What happens next?
ANd furthermore, how in the world, after our series of unfortunate events, can we afford an ALS patient in our home while we are still trying to replace all we lost from our housefire? I am scared, uncertain and confused.
Any ideas?
Last August, my husband and I lost our 5 month old baby, Ryan to Sudden Infant death Syndrome. What are the odds?
Two calender months later, a wire sparked a massive house fire and demolished our house. We had no insurance. What are the odds?
Two weeks ago, my father (who lives with us) was diagnosed with ALS.
What are the odds?
HE has lost the use of his right arm, starting to cramp in his left, leg cramps at night, and his skin is popping all over both arms, upper chest and down to his legs. He has stumbled a few times, but has not fallen. He still drives, although I know he shouldn't. A car accident would just be such a better ending then what we are facing ahead of us. He independantly eats, though it takes him an hour and a half to complete a meal.
I have 4 other (surviving) children and am pregnant again. (on purpose). Being a primary caregiver is an honor, although I am scared to death at what lies ahead.
I really wish the doctors at Hershey Medical Center could give us a time frame on my dads life.
SO my questionis:
What happens next?
ANd furthermore, how in the world, after our series of unfortunate events, can we afford an ALS patient in our home while we are still trying to replace all we lost from our housefire? I am scared, uncertain and confused.
Any ideas?