deanna protocol scam

Status
Not open for further replies.

pearshoot

Senior member
Joined
Feb 6, 2011
Messages
636
Reason
PALS
Diagnosis
02/2010
Country
US
State
mo
City
nixa
anyone following this discussion? pros or cons
 

Ms. Pie

Very helpful member
Joined
Mar 26, 2011
Messages
1,847
Reason
PALS
Diagnosis
10/2010
Country
US
State
CO
City
Colorado
Cons, hundreds of dollars per month for vitamins and supplements, hard on vital organs, tremendous amount of pills to take per day. Pros, some people think it slows progression.
 

marypat

Distinguished member
Joined
Jan 3, 2012
Messages
287
Reason
PALS
Diagnosis
11/2010
Country
US
State
OHIO
City
london
it is so hard to say what slows progression...rilutek...dex.....dancing naked under a waning quarter moon. i'm on rilutek cause insurence pays, the dex trial and take coconut oil cause i found enough research citing benifits. the deanna protocol is hard to get info on. if they are trying to help without gain why isn't the whole thing on the web page?
 

Susan10

Distinguished member
Joined
Nov 26, 2011
Messages
189
Reason
PALS
Diagnosis
09/2011
Country
US
State
OK
City
Bible Belt
After the initial story appeared on The 700 Club last week, I scoured the Internet for more information. Their website is called winning the fight.com. I copied the research PDF and sent it to a trusted friend who is a pharmacy student. She said there are over 140 scholarly articles dealing with nutrition and supplements. I also sent it to the ALS nurse at my clinic. Here is her response:

I do not see any actual research papers on this “Deanna protocol” or scientific studies. If this was truth it would be on the actual news not the 700 club and someone would have won the biggest award there is for stopping the progression of ALS. This kind of diet can cause horrible side effects that can cause your progression to rapidly increase and cause hospitalization. Also, note the sizeable disclaimer…. So in short, don’t believe everything you read or see on TV. Only look into trusted websites.
 

sadiemae

Extremely helpful member
Joined
Sep 20, 2009
Messages
2,527
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
NV
City
Reno
I have the list of stuff. It consists if one thing that is injected. Joel did the injections years ago, this is nothing new, just a new name. If it really worked, it would be presc ribed by all docs. Do a search of glutathion. It as been discussed on here sinc 2006.
 
Last edited:

Ms. Pie

Very helpful member
Joined
Mar 26, 2011
Messages
1,847
Reason
PALS
Diagnosis
10/2010
Country
US
State
CO
City
Colorado
Oh, i didn't mean to say they were cons! I don't know what I meant there. I am skeptical though.
 

ottawa girl

Moderator emeritus
Joined
Jun 14, 2012
Messages
1,569
Reason
PALS
Diagnosis
04/2012
Country
CA
State
Ontario
City
Ottawa
Oh, i didn't mean to say they were cons! I don't know what I meant there. I am skeptical though.

I think you meant to type Costs not cons:roll::roll:
 

sadiemae

Extremely helpful member
Joined
Sep 20, 2009
Messages
2,527
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
NV
City
Reno
I will say I think it is a CON. It may or may not be, but it has been around for many yrs
 

marypat

Distinguished member
Joined
Jan 3, 2012
Messages
287
Reason
PALS
Diagnosis
11/2010
Country
US
State
OHIO
City
london
pie i think you were listing the pros and cons of it
 

Ms. Pie

Very helpful member
Joined
Mar 26, 2011
Messages
1,847
Reason
PALS
Diagnosis
10/2010
Country
US
State
CO
City
Colorado
Yeah, that was it MP. Thanks!
 

notgivnup

Senior member
Joined
Nov 8, 2010
Messages
833
Reason
PALS
Diagnosis
11/2010
Country
OS
State
Darkside of Moon
City
country
I am thinking if it were true the news would be spreading like wildfire in our community. Just my thoughts.
 

HelenL

Very helpful member
Joined
Dec 17, 2010
Messages
1,602
Reason
PALS
Country
US
State
MA
City
Southborough
Seems like it is... I'm going to add what it says are the most important, some of which I already take.
 

kenwood54

Active member
Joined
Aug 5, 2012
Messages
36
Reason
PALS
Diagnosis
08/2012
Country
US
State
VA
City
Herndon
I've been emailing the doctor and messaging "Deanna" on FB. I've got most of the supplements but haven't actually started yet. I certainly don't expect a miracle but at the same time wonder, Why not? My progression is pretty fast and if there's a chance it could slow it then, well.... I'm on Rilutek and that's been "working" according to the docs. At least has dramatically slowed the fascis, I mean BIG time. I don't know, still torn on this protocol.....
 

pearshoot

Senior member
Joined
Feb 6, 2011
Messages
636
Reason
PALS
Diagnosis
02/2010
Country
US
State
mo
City
nixa
been doing herbs, vitimines, supplements, homopathic medicine, tea since diagnosed but i test every 60 days to see what or if i need something. now there is excitment about taking 40-60 pills and this is after i was called cruel for even suggesting it may slow progression
 

jpsteeler99

Active member
Joined
Jun 7, 2012
Messages
63
Reason
PALS
Diagnosis
06/2012
Country
US
State
NJ
City
Waldwick
I read on another forum that Eric Edney was involved with the "Winning the Fight" website and it was a scam. I am not sure how it could be a scam if you don't have to pay for anything...
 
Status
Not open for further replies.
Top