davis

[davis06]

Hi I am new. I got the news ALS in April 2006. It has affected my speech
and breathing so far. It seems as my life has turned upside down overnight.
I really am glad I found this support group. I stay busy to keep it of mine mine it seems to help. I have a bipap for breathing at night it helps.
Thanks to everone.

 

[Barbie4]

Hello

hello, my name is Barb and my friend has been diagnosed. Glad you found this site as I have found it quite helpful.

Barb

 

[Al]

Hi davis 06. I've been on a Bipap for almost a year and a half now. It really can be a lifesaver. It's no big deal to travel with as long as you make sure to bring your own extension cord. I've taken mine on a cruise and down to Florida and the Grand Canyon. I still haven't figured out a way to take it on long flights ie. to the Philippines 21-24 hours flying. I've talked to a couple of pilots and they have approached their maintainance depts to work on something for it. Just a little bit of info for you to file in your info container. Welcome to the club that no one wants to belong to.