davis

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davis06

New member
Joined
May 18, 2006
Messages
7
Reason
PALS
Country
US
State
Ga.
City
Gainesville
Hi I am new. I got the news ALS in April 2006. It has affected my speech
and breathing so far. It seems as my life has turned upside down overnight.
I really am glad I found this support group. I stay busy to keep it of mine mine it seems to help. I have a bipap for breathing at night it helps.
Thanks to everone.
 

Barbie4

Distinguished member
Joined
Mar 26, 2006
Messages
139
Country
CA
State
Ontario
City
Everett
Hello

hello, my name is Barb and my friend has been diagnosed. Glad you found this site as I have found it quite helpful.

Barb :)
 

Al

Moderator emeritus
Joined
May 25, 2004
Messages
7,960
Reason
PALS
Diagnosis
10/2003
Country
CA
State
On
City
NW of Toronto
Hi davis 06. I've been on a Bipap for almost a year and a half now. It really can be a lifesaver. It's no big deal to travel with as long as you make sure to bring your own extension cord. I've taken mine on a cruise and down to Florida and the Grand Canyon. I still haven't figured out a way to take it on long flights ie. to the Philippines 21-24 hours flying. I've talked to a couple of pilots and they have approached their maintainance depts to work on something for it. Just a little bit of info for you to file in your info container. Welcome to the club that no one wants to belong to.
 
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