• Memoriam wall
    • We've created a memoriam wall to remember our friends
    • If you know someone that battled ALS, please add them here

David Jayne

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lgelb

Forum Supporter
Moderator
Joined
Nov 5, 2009
Messages
7,261
Reason
Lost a loved one
Diagnosis
09/2009
Country
US
State
WA
A longtime activist who helped change federal home health requirements, David opted to be weaned from the vent in June.
 

Diane H

Senior member
Joined
Sep 28, 2013
Messages
631
Reason
PALS
Diagnosis
11/1985
Country
US
State
Indiana
Meeting David online was the beginning of the end of my "I'll never go on a vent" stance. His ability and determination to show the world that there was the potential for a good life on a ventilator even with ALS gave me the information that doctors didn't acknowledge. His campaign to change Medicare's homebound definition literally opened the world to us. He gave me fourteen - and still counting - good years on a ventilator. Thank you, David.
 
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