Dancing Around ALS

[Eureka]

Hey guys,

I have been in and out of the ER for months now and finally am getting signs that what I might have may be a MND. It all started with PVC's that I was told were "benign" and put on beta blockers for. I have seen Neurologists, Cardiologists, Immunologists, and a plethora of different doctors and they have yet to find anything.

Recently I have noted trouble with picking things up and having jerking movements along with overall internal trembling feelings and weakness.

I was a baseball player in high school and college and am just 23 so this disease seemed far fetched for many doctors but the signs are becoming more and more apparent.

With this virus and everything, i have little idea what to do other that sit back and watch myself deteriorate.

Would love if you guys could share what it was like going through the diagnosis process!

 

[ShiftKicker]

Hi Eureka,

I have moved your thread over to the "Could this be ALS" subforum for now. It appears you are still in the process of finding the correct diagnosis, and MND is something you are considering. Perhaps you can let the folks here know what the doctors said with regards to MND. Have you had an EMG? MRI? What are the next steps your doctors are taking with regards to ruling things out?

 

[lgelb]

Especially in the early days of a beta blocker [and getting the drug/dosage right is often a trial and error process], PVCs can keep company with trembling/shaking. and that can be perceived as clumsiness or stiffness also.

Hydration, nutrition, stress management, and exercise are all important to feeling better. I don't see any hint of ALS in your picture, and your stated regret that "nothing has been found" at your young age, on the back of numerous health care encounters, and seemingly intact function suggests a belief that is not substantiated in fact -- a very good thing.

 

[Eureka]

Hi Eureka,

I have moved your thread over to the "Could this be ALS" subforum for now. It appears you are still in the process of finding the correct diagnosis, and MND is something you are considering. Perhaps you can let the folks here know what the doctors said with regards to MND. Have you had an EMG? MRI? What are the next steps your doctors are taking with regards to ruling things out?

I have had a brain CT scan when I fell about a month ago and have yet to receive any news about that. The only other brain scan that I have recieved was for a CT Angiogram which came back normal. I have an appointment with my neurologist next week so I am hoping she will schedule all of the neccessary tests then.

 

[Eureka]

Hi Eureka,

I have moved your thread over to the "Could this be ALS" subforum for now. It appears you are still in the process of finding the correct diagnosis, and MND is something you are considering. Perhaps you can let the folks here know what the doctors said with regards to MND. Have you had an EMG? MRI? What are the next steps your doctors are taking with regards to ruling things out?

I have yet to have an EMG but will be having one soon. I have an appointment with my Neurologist from SLU University on April 13th. She will be assessing the situation further as she is a specialist in movement disorders and MND's.