Dalfampridin and Kepra

morleyde

New member
Joined
Apr 4, 2018
Messages
3
Reason
DX UMND/PLS
Diagnosis
9/2017
Country
US
State
MO
I am wondering if anyone has tried either Dalfampridin or Kepra. I have heard mixed reviews about both of them. There is an ongoing study for Dalfampridin in PLS. I think both are off label right now for PLS.

I tried Baclofen but it made my walking worse. I am currently on Tizanidine. It helps but is difficult to take during the day because it causes tiredness.
 

ShiftKicker

Moderator
Joined
Mar 16, 2015
Messages
2,263
Reason
DX UMND/PLS
Diagnosis
06/2015
Country
CA
State
BC
I've seen a few people report improvements and others not, or who have found the side effects are too much (mood stuff- irritability). I hope there is someone on the forum who might have first hand knowledge of it and who can provide some feedback for you.
 

Gorby

Distinguished member
Joined
Nov 5, 2015
Messages
100
Reason
DX UMND/PLS
Diagnosis
08/2015
Country
CA
State
British Columbia
I know that there is a Facebook group that raves about it. Search "Keppra Club for PLSers" on Facebook.

My understanding is that it is good for cramping. Since I don't have much cramping, I haven't tried it.
 
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