Dalfampridin and Kepra

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morleyde

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Joined
Apr 4, 2018
Messages
10
Reason
DX UMND/PLS
Diagnosis
9/2017
Country
US
State
MO
City
Saint Charles
I am wondering if anyone has tried either Dalfampridin or Kepra. I have heard mixed reviews about both of them. There is an ongoing study for Dalfampridin in PLS. I think both are off label right now for PLS.

I tried Baclofen but it made my walking worse. I am currently on Tizanidine. It helps but is difficult to take during the day because it causes tiredness.
 

ShiftKicker

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Joined
Mar 16, 2015
Messages
2,679
Reason
DX UMND/PLS
Diagnosis
06/2015
Country
CA
State
BC
City
Vancouver
I've seen a few people report improvements and others not, or who have found the side effects are too much (mood stuff- irritability). I hope there is someone on the forum who might have first hand knowledge of it and who can provide some feedback for you.
 

Gorby

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Joined
Nov 5, 2015
Messages
103
Reason
DX UMND/PLS
Diagnosis
08/2015
Country
CA
State
BC
City
Vancouver
I know that there is a Facebook group that raves about it. Search "Keppra Club for PLSers" on Facebook.

My understanding is that it is good for cramping. Since I don't have much cramping, I haven't tried it.
 
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