Amandagall5
Active member
- Joined
- May 9, 2015
- Messages
- 34
- Reason
- Lost a loved one
- Diagnosis
- 12/2012
- Country
- US
- State
- OK
- City
- Midwest city
Hello.
My husband is in the end stages, can't do anything for himself, eats very little, no peg tube or vent etc. I was taking him out until about a month ago, I think he's too poorly for it now. I was curious as to what people's daily routines were at this stage.
I usually get him up around 8 and give him his breakfast and the first of his meds. The aide comes at 9 and showers and dresses him, then he's usually in the living room with the tv on. She gives him his lunch and does other things related to his care like teeth, laundry etc. sometimes I go out, other times I'm at home gardening or doing other stuff around the house. She leaves at 3 and I take over then, give him his dinner and his meds, and around 10pm he goes to bed. He can hardly talk now, and is not interested in the dynavox any more, he just exists every day. I talk to him about different things but he doesn't respond really, except to ask for water or repositioning his chair etc..
At this stage, is this routine similar to others?
Amanda.
My husband is in the end stages, can't do anything for himself, eats very little, no peg tube or vent etc. I was taking him out until about a month ago, I think he's too poorly for it now. I was curious as to what people's daily routines were at this stage.
I usually get him up around 8 and give him his breakfast and the first of his meds. The aide comes at 9 and showers and dresses him, then he's usually in the living room with the tv on. She gives him his lunch and does other things related to his care like teeth, laundry etc. sometimes I go out, other times I'm at home gardening or doing other stuff around the house. She leaves at 3 and I take over then, give him his dinner and his meds, and around 10pm he goes to bed. He can hardly talk now, and is not interested in the dynavox any more, he just exists every day. I talk to him about different things but he doesn't respond really, except to ask for water or repositioning his chair etc..
At this stage, is this routine similar to others?
Amanda.