Really no progression - except my right arm is painful when I reach for something - also at night when I get up to use the restroom - sometimes I can hardly walk - have to have walker on standby. My friend suggest - just be grateful for each day and don't think about the possibilities - I am trying to do this -but it is sometimes difficult.
bgoyes, that happened to me too. This is a gray area where doctors have different interpretations. I was dx with probable PLS for several years, then “diverse evidence” showed up on a EMG and I was sent to the ALS clinic with a dx of slow variant of ALS. The head neurologist dumped everyone under ALS. Later a substitute neurologist referred to my PLS! After chatting with various doctors at clinic the consensus is UMND ALS, but the forum puts us under UMND/PLS!!
Mod note : to clarify the forum interest UMND / PLS stands for upper motor neuron disease/ PLS. It was meant to include HSP mostly besides PLS, in other words pure upper motor neuron diseases. We had a limited number of menu choices and were trying to cover everything while having subcategories for the various motor neuron diseases.
If you have a diagnosis of motor neuron disease you of course should pick the forum interest category that best reflects what you been told by your doctors. If asked, I would tell anyone with A confirmed diagnosis of ALS whether lower motor dominant, upper motor neuron dominant or unspecified that the category of ALS is probably most appropriate