Dad's final days

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jillg

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Joined
Mar 14, 2009
Messages
18
Reason
Loved one DX
Diagnosis
02/2009
Country
US
State
wisc
Hi all,
My dad was ALS diagnosis with bulbar ALS in Feb 2009 & got his PEG and Trach 11 months later. He is now in what we believe are his final days with us. I'm frustrated that even after all this time and all the pain he has suffered, he just can't go to be with Jesus. I've been at his bedside for almost 2 weeks and have witnessed the breakdown of his body. I didn't think it could get any worse and it has. Pray for my Dad and my family. Hospice can tell us nothing (how long) because they "are not experinced in ALS". If I had a dime for everytime we've heard that one.
 

AKjo

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Joined
Nov 3, 2010
Messages
379
Reason
Lost a loved one
Country
US
State
Alaska
Jill, I am so sorry for the suffering of your dad. My prayers are for a peaceful passing for your dad, and comfort and strength for you. I'm sure you are feeling so powerless in this situation.

Blessings and hugs,
jo
 

EGBAR

Distinguished member
Joined
Jun 8, 2011
Messages
171
Reason
PALS
Diagnosis
06/2011
Country
US
State
FL
Jill, you and your Father are in my prayers. I wish you both comfort. Just know that he is appreciative of your support and love. I want to record it on tape so my daughter can hear me tell her that when I can no longer talk and she is going through what you are. I wish I could do more for you.
 

jillg

Member
Joined
Mar 14, 2009
Messages
18
Reason
Loved one DX
Diagnosis
02/2009
Country
US
State
wisc
That is a wonderful idea! I miss the sound of my Dad's voice, it's the little things that ALS takes from us that I miss the most.
 

Karigav

Active member
Joined
Oct 10, 2010
Messages
33
Reason
Lost a loved one
Diagnosis
12/2010
Country
US
State
Ky
Peace and comfort to you, dad, and family... I am going to pray for you all!
 

larkwarf

New member
Joined
Jul 3, 2011
Messages
1
Reason
Loved one DX
Diagnosis
10/2010
Country
US
State
Washington
Dear Jill,
My heart goes out to you during this time. There are so many questions that go unanswered with this disease. Just know there is a purpose for every breath we're given. I encourage you to find your peace in hope surrendered rather than hope fulfilled. You are not alone in this battle. May God comfort you in your sorrow.
 

Zaphoon

Extremely helpful member
Joined
Aug 2, 2008
Messages
2,855
Reason
DX UMND/PLS
Diagnosis
08/2011
Country
US
State
Missouri
Jill, Thank you for being there for your dad during this time and thank you for all that you've done and continue to do. You are making a world of difference for him!
 

Jellycat

Distinguished member
Joined
Jul 3, 2010
Messages
443
Reason
Lost a loved one
Country
IRL
State
Dublin
Dear Jill,
Courage dear heart. It's so hard to be present to the final breakdown of the body but you are doing such an important thing. You are with him. When my mother was dying I was amazed at how long it takes for the body to shut down even after some vital organs have stopped. I wondered when the end would ever come...

If you can at all do something to release the frustration & pain & then keep right on holding him, talking to him, loving him.

Sending warm thoughts & prayers your way.
Avril
 

cervus

Senior member
Joined
Mar 18, 2011
Messages
923
Reason
Lost a loved one
Diagnosis
11/2010
Country
CA
State
AB
Thinking of you and your family, Jill.
 

notgivnup

Senior member
Joined
Nov 8, 2010
Messages
815
Reason
PALS
Diagnosis
11/2010
Country
OS
State
Darkside of Moon
My prayers go out for your You your Dad, and all his loved ones. May you find Peace on your journey. ((HUG))
 

Francais

New member
Joined
Jul 7, 2011
Messages
9
Reason
CALS
Country
US
State
Florida
God bless you, how long has it been since your dad was able to tloerate a feeding? And what is his urinary output for the last 12-24 hours? That is usually a key indicator that no one wants to bring up. So sorry for what you are going through.
 

AKjo

Distinguished member
Joined
Nov 3, 2010
Messages
379
Reason
Lost a loved one
Country
US
State
Alaska
Jill, you are at the top of my mind this afternoon. I was with my little 93 year old mom as she died, alternately holding her hand, crying, singing hymns, laughing and sharing stories with my husband and son throughout the evening. As hard as it was to watch her go, it was also a privilege to be by her side as she took her last breath. I hope you can feel peace as you say goodbye to your dad.
 

Atsugi

Legendary member
Joined
Jan 11, 2011
Messages
5,173
Reason
Lost a loved one
Diagnosis
12/2010
Country
US
State
Florida
Thanks for sharing this most important thread.
 

epkennedy

Distinguished member
Joined
Jun 25, 2011
Messages
112
Diagnosis
03/2010
Country
US
State
Maine
Awe. May you continue to find strength during this difficult time. Hugs
 

jillg

Member
Joined
Mar 14, 2009
Messages
18
Reason
Loved one DX
Diagnosis
02/2009
Country
US
State
wisc
Thank you all for your kind words. Dad passed away on July 17th. Very peaceful end, no struggles, he just grabbed Jesus's hand and left. His pain is gone, he been set free.
 
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