Hello
My father was just recently diagnosed with ALS - acutally in Oct. 2005. I guess I have been in denial until recently. I do not live in the same city as my father and only get to see him about once a month. It seems that every time i see him he is getting worse and worse. It just breaks my heart to see him like that. He was always such an active, energetic and outgoing person. Now he does not really want to go out and does not really want to see people. He is still able to walk - with the help of a cane. But i think he is having some trouble coming to terms with what is going on. This is the hardest thing i have ever had to go through watching my father slowly degress.
I try to keep him up beat and thinking about his granddaughter who was born in Aug. but some days it is all just too much for me to bare. Any help suggestions, comforting words?
I just feel so helpless and alone. My husband is so great and very supportive but he can't really understand what I am going through - heck i don't even knwo what i am going through!

My father was just recently diagnosed with ALS - acutally in Oct. 2005. I guess I have been in denial until recently. I do not live in the same city as my father and only get to see him about once a month. It seems that every time i see him he is getting worse and worse. It just breaks my heart to see him like that. He was always such an active, energetic and outgoing person. Now he does not really want to go out and does not really want to see people. He is still able to walk - with the help of a cane. But i think he is having some trouble coming to terms with what is going on. This is the hardest thing i have ever had to go through watching my father slowly degress.
I try to keep him up beat and thinking about his granddaughter who was born in Aug. but some days it is all just too much for me to bare. Any help suggestions, comforting words?
I just feel so helpless and alone. My husband is so great and very supportive but he can't really understand what I am going through - heck i don't even knwo what i am going through!