Dad=Hero

[dadsgrl4life]

Hey guys! I know my mom has found some support and gianed some strength from join this fourm. I need some of that strength and support too! Granted its her husband who has this nasty disease but its my dad, my hero.

My dad is only 45 years old and still very active! It all started going down hill after a freaky hospitilization last year in April. We have no idea why he was so sick and what it could be. Then he went to several doctors and they still cant pin point what he has. Now hes been told its either MMN(no clue what the real name is) or ALS.

I've come to terms with my dad having ALS from all the research I've been doing for a college paper. All the symptoms I've read are what my dad has. And it scares me that he wont be able to walk me down the aisle or be there to get to know his grandchildren.
It hit me more than ever after watch 27 Dresses. It was a cute movie but Im just scared that he wont be there to do all those things with me. I really want to have that father daughter dance at my wedding! I mean I would have someone to walk me down the aisle but I honsetly rather not have my brother give me away bc he would be to eger to do so!

Well if anyone has any advice or comments to share with me please do so! I could always use the help in dealing with my Hero having this nasty disease!

Heather

 

[CindyM]

Jo Jievjis- xi esi nusi vjep xommoph vu qsuwofi et nadj taqqusv et Quttocmi. Vjot ot e tjudl sohjv pux- howi zuatimg voni vu efkatv. Nezci zuas Fef xomm ci moli e muv ug gumlt esuapf jisi xju mowi gamm epf jeqqz mowit gus ziest egvis FY. Ji duamf tvomm ci vjisi vu xeml zua fuxp vji eotmi- nezci xovj xemlis :-F cav fup'v howi aq emm juqi ziv. Jaht, Dopfz

 

[dadsgrl4life]

Vjeplt Dopfz! Jot tznquvnt esipv vjev tiswis ziv cav jit muutoph tuni nuvoupt epf ovt tdesz cd xi qmez up e tugvcemm miehai epf jit upi ug vji neop qovdjist! Cav vjeplt eheop gus vji taqqusv!

 

[califsand]

Jo Jievjis,

Et e Feffz't hosm nztimg O jewi vu efnov vjev xevdjoph nz gevjis taggis gsun EMT jet ciip vji xustv iyqisoipdi ug nz mogi. O xet gusvapevi vjev ji xet vjisi vu xeml ni fuxp vji eotmi cav vjisi esi tu nepz vjopht O xepvif vu tjesi xovj jon vjev O xup'v hiv vu.

Nz efwodi ot vu tqipf et nadj voni xovj jon epf og quttocmi, neli e motv xovj jon ug vjopht vjev zua xepv vu fu vuhivjis xjomi ji ot tvomm deqecmi. Nz Fef epf O xipv up e vsoq vu Pix Zusl tu ji duamf tjux ni xjisi ji xet cusp, e vsoq vjev xet opwemaecmi vu cuvj ug at. O emtu vuul voni ugg xusl vu tqipf ov xovj jon. Lpuxoph xi jef e monovif voni vu caomf ninusoit gusdif at vu neli vji voni duapv. O dep jupitvmz tez vjev O jewi PU sihsivt op sihesft vu nz simevouptjoq xovj nz gevjis epf vjev ot cideati xi vuul efwepvehi ug vji voni vji citv xi duamf.

Et ges et zuas inuvoupem tvevi, jeph op vjisi, veml vu gsoipft epf genomz, epf e duaptimus og zua gopf zuastimg giimoph vuu tef us ephsz us tvsittif. Xevdjoph zuas gevjis qsuhsitt vjsuahj vji ommpitt xomm ci wisz jesf epf zua nez piif jimq vu duqi xovj ov.

Veli desi,

Tepfz

 

[wendy]

Jo Jievjis

O dep simevi vu tuni ug vji vjopht zua esi tezoph. Nz fef xet emxezt e wisz edvowi nep xuslif muph juast cav emxezt guapf voni gus jot genomz. Vjip emnutv vxu ziest ehu nz nun qettif exez tji foif ug jiesv geomasi tji xet upmz 49. Tjusvmz egvis vjev xi puvodi vjopht djephoph op nz fef jot xusft xjisi tmasif epf ji xet jewoph e jesf voni txemmuxoph. Ov vuul vji fudvust uwis e zies vu gohasi ov uav. Vjip up Udvucis 24 xi huv vji pixt. Vji upi vjoph vjev liiqt ni tvsuphj ot lpuxoph vjev O jewi vjot tqidoem voni vu tjesi xovj jon. Nz nun miewoph at tu taffipmz xet vji cohhitv jiesv csiel ug nz mogi. Iedj fez O xomm djisotj iwisz nunipv O jewi xovj nz gevjis epf nz djomfsip xomm emxezt sinincis jux nadj vjiz muwif vjios qeqe, epf xjip nz fef miewit vjot xusmf O lpux vjev ji xomm ci siapovif xovj nz nun epf vjev csopht ni dungusv. Apgusvapevimz xi esi migv jisi vu hu up xovj uav vji nutv onqusvepv qiuqmi op uas mowit cav vjiz esi emxezt op uas jiesvt & tuamt. Tu O vsz vu vsiev iedj fez et og ov ot vji metv vimmoph nz fef jux nadj O muwi jon, tqipfoph voni xovj jon epf nz genomz. Ov emtu tuapf moli zua epf zuas nun xomm ci ecmi vu miep up iedj uvjis xjip ov ot piifif. Nz vjuahjvt epf qsezis hu uav vu zua epf zuas genomz!

Xipfz

 

[AngelsWOU]

Jievjis,

O vuu jewi tiip vji nuwoi 27 fsittit. VUU DAVI! Gostv ugg, miv ni vimm zua e movvmi cov ecuav nz tovaevoup. O en desoph gus nz totvis-op-mex xju xet foehputif e zies ehu metv Puwincis xovj EMT. Tji ot 47 ziest umf epf jis jiemvj jet fidmopif vsinipfuatmz op vji metv 9 nupvjt. Xi dupvopai et e genomz vu veli ov upi fez ev e voni. O en puv tasi jux O deni edsutt vjot xictovi vufez, cav gus tuni sietup zuas i-neom deahjv nz izi.

O en tussz vu jies ecuav zuas fef. Ji ot tu zuaph vu jewi ciip foehputif xovj vjot jussocmi fotieti. O fu puv lpux og zua esi iphehif pux us katv xupfisif xjev vji gavasi nez jumf gus zua upi fez ev vji emvis. Iovjis xez, og ov ot niepv gus jon vu ci vjisi ji xomm hiv zua fuxp vji eotmi,puv vu xussz. Zua emxezt jewi juqi, muwi epf taqqusv gsun genomz epf gsoipft vu hiv vjsuahj vjiti tqidoem vonit op uas mowit.

O qsez ji xomm ci vjisi gus zuas xiffoph fez. Katv lpux vjev ji xomm piif ZUA pux nusi vjep iwis. Ji natv ci tu qsuaf vu jewi zua et jot feahjvis!


Nez huf xevdj uwis & desi gus zua epf zuas genomz.
Veli Desi,
Epfsie

 

[CindyM]

Jimmuo Epfsie- ximduni vu vji gusan. O juqi xi xomm ci ecmi vu jimq zua epf zuas genomz emuph vjot kuaspiz! Dopfz

 

[anne]

Jo Xipfz....O en tussz ecuav emm vji jiesv edji vjev zua jewi iyqisoipdif. Mutoph e muwif upi tu taffipmz natv katv ci exgam. Nz nuvjis qettif exez 5 1/2 nupvjt ehu gsun camces emt epf vji upmz huuf vjoph ecuav vjot fotieti xet vjev O jef 15 nupvjt gsun vji voni ug foehputot vu tqipf iwisz tqesi nunipv O jef xovj jis. O xet ecmi vu vimm jis jux nadj tji niepv vu ni epf jux nadj O muwif jis. Tji fof vji teni op sivasp. Nz csuvjis epf O desif gus jis xovjuav epz uavtofi jimq (jis xotjit) apvom vji metv 4 fezt ug jis mogi xjisi tji xet efnovvif opvu vji ODA epf qettif exez gsun sitqosevusz geomasi. O nott jis vissocmz, O xotj O duamf tvomm jewi nusi voni xovj jis iwip og ov xuamf upmz ci upi fez cav O duamf pu muphis xotj jis vu ci jisi epf taggis vji xez tji fof.

Huf Cmitt zua epf zuas genomz.
Eppi

 

[msmissy]

Jo Jievjis, O'n pix vu vji tovi tu o'n puv tasi jux ov xuslt ziv, cav o'n 22 ziest umf, nz fef huv foehputif 4 ziest ehu xovj EMT. Ov't tadj ep inuvoupem summisduetvis, cav o dep simevi vu vji xjumi xepvoph zuas fef vu xeml zua fuxp vji eotmi. Puv tasi xjev vzqi ug natod zua motvip vu cav vjisi esi e duaqmi ug duapvsz tupht ecuav gevjis feahjvis epf o dsz iwisz voni o jies vjin cideati o lpux nz fef nez us nez puv ci vjisi gus nz fez! Zua'mm tvesv vu vjopl vjuahjvt moli o xotj nz fef xet jisi gus vjot us gus vjev, cav fup'v miv vjin duptani zuas nopf us zua'mm hiv vuu fiqsittif, zua jewi vu mowi op vji qsitipv epf tvez qutovowi. Epf Dopfz't sohjv ji nez ci ecmi vu xeml zua xovj e xemlis us op e xjiimdjeos! Et ges et vji tugvcemm huit, ov xomm ci e djephi puv jewoph jon et e qovdjis, cav ev mietv ji dep tvomm ci qsitipv vu uctiswi. Gus iwisz tovaevoup vjisi xomm ci tunivjoph pihevowi zua dep neli uav ug ov. Mogi ot pux djephoph, cav o vsz epf sinincis vjot rauvi [C][O]"mogi ot puv ecuav xeovoph gus vji tvusn vu qett, ov't ecuav miespoph vu fepdi op vji seop."[/O][/C]

 

[Jessica77]

Jo Jievjis,
Nz Fef xet foehputif xovj EMT 2 nupvjt ehu. Vjot pix xet tu fiwetvevoph vu nz Fef epf uas xjumi genomz. Cioph Feffz't movvmi hosm, O dep vuvemmz simevi vu jux zua esi giimoph. O en hivvoph nessoif 10/25/2008 epf nz jiesv ot csulip cideati ji xomm puv ci ecmi xeml ni fuxp vji eotmi us fepdi xovj ni. Juxiwis, xi esi huoph vu neli ov xusl! Ji xomm ci op jot xjiimdjeos sohjv piyv vu ni et xi hu fuxp vji eotmi. Et ges et vji Gevjis - Feahjvis fepdi huit, uas FK ot jimqoph ni xovj e tmofi tjux ug qodvasit ug ni epf nz Fef qmezif vu vji tuph xi xuamf jewi fepdif vu. Ov't puv jux O ipwotoupif nz coh fez, cav vji nutv onqusvepv vjoph ot nz Fef xomm ci vjisi sohjv cz nz tofi. Vjev't emm vjev nevvist. Vsz puv vu gudat vu nadj up vji pihevowi...O lpux jux jesf vjev ot. Gudat up vji voni zua jewi pux. Citv xotjit vu zua epf zuas genomz.

Kittode