najib
Member
- Joined
- Jul 29, 2018
- Messages
- 15
- Reason
- Loved one DX
- Diagnosis
- 06/2018
- Country
- MA
- State
- SL
- City
- rabat
HELLO every one i want to thank every one who take his time and read this .
my name is Najib I'm 28 years from morocco "north Africa" . we found recently that my father has ALS after a year of suffering between doctors and tests . you cant imaging how devastating was that to me and to my family . especially that i live in third world country that have no clue what ALS and have no health infrastructure no support for people with ALS. the expenses of the drug "rilutek" too much for us and we cant find it in morocco and we have to order it from France and wait for weeks to get it , we buy the drug for 300$ its so so expensive .
the thing is that in 4 months ago i had twitching and weakness in my hand my shoulder and my legs and clumsiness in my finger and i found lately a dent in my hand that really scare me especially that i read 5% to 10% people inherit ALS .
i cant go to a doctor cause i expensive and i have no money to do that and i dont want my family to know about that because it will make them collapse , the only place i found that i can share and take advice from is this forum.
please look do i have ALS and i m so sorry for the poor English and thank you+
NAJIB.
my name is Najib I'm 28 years from morocco "north Africa" . we found recently that my father has ALS after a year of suffering between doctors and tests . you cant imaging how devastating was that to me and to my family . especially that i live in third world country that have no clue what ALS and have no health infrastructure no support for people with ALS. the expenses of the drug "rilutek" too much for us and we cant find it in morocco and we have to order it from France and wait for weeks to get it , we buy the drug for 300$ its so so expensive .
the thing is that in 4 months ago i had twitching and weakness in my hand my shoulder and my legs and clumsiness in my finger and i found lately a dent in my hand that really scare me especially that i read 5% to 10% people inherit ALS .
i cant go to a doctor cause i expensive and i have no money to do that and i dont want my family to know about that because it will make them collapse , the only place i found that i can share and take advice from is this forum.
please look do i have ALS and i m so sorry for the poor English and thank you+
NAJIB.