Dvholmes
New member
- Joined
- Mar 22, 2021
- Messages
- 7
- Reason
- PALS
- Diagnosis
- 07/2020
- Country
- US
- State
- MI
The CuATSM trial is fully enrolled and we can expect results later this year. Has anyone spoke with anyone in this trial? I have only found 2 individuals in the trial and they’ve both passed. They were not SOD1 carriers and I wonder if that had anything to do with it. I have not found any individuals claiming any benefit from CuATSM. I know there is a 1:1 drug to placebo in this trial but I would expect hearing some benefit from someone on the open label by now. It’s giving me concern about the effectiveness of CuATSM despite all the media hype.