Crystall> EMG w/Dr. Mccluskey

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lhagsjr

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What happened today? What did he say? Results?
 

crystalkk

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Lou & Anniemarie,

I just got on, I can't private megssage anyone . I will not be able to until I have 50 posts or something
from what i read from davids post.

Dr Mc Cluskey said my Emg was normal. He does not think I am atrophing
due to something nueromuscular. He did not due a complete emg. I did not hear any popping noises which i quess is good. He thinks it is from disuse. My hands look like 2 little cat claws, and how do your hands & feet atrophy from disuse I didn't stop using them....

I asked him to give me copies of my Emgs and I think I caught him off guard. He said he had another patient waiting and he will send them to me. I will call his secretary on Monday.

Lou how much of an emg did he do on you?
How did you get you reports?

Crystalkk
 

lhagsjr

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Crystall

I have to leave work now, I will respond about 10 PM tonight...
 

lhagsjr

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one question...

what do u mean he didnt do a full EMG? how do u know? did he tell you that?
 

crystalkk

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He just did one side of the body. Not both sides and the paraspinals.
 

crystalkk

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Hey lou,
you said you would get back to me last night.

Crystalkk
 

lhagsjr

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Crystall

Here is my entire expereience with Dr. McCluskey:

1.) Saw him for the first time on May 15th. He did a complete neurological exam. He told me everything was completely normal. He diagnosed me with BFS and sent me on my way. I asked for the written report which I got 2 weeks later. The written report was not a completely normal report. It said I had exaggerated reflexes but WITHOUT increased tone. I get if there is no increased tone then its OK because later he referred to my reflexes are normal. I called and requested and EMG, they agreed to do one.

2.) June 9th I had my EMG. He did my left side of my body. He was pretty thorough, took about an hour. He told me it was pretty much normal but it showed "possible mild myopathy". I was then scheduled for a biopsy. He said 100% no ALS and there was nothing wrong with the nerves on the test.(I think this means no FIBS, PSW's, fasics). Again, I asked for the written report. I had some units that showed short to normal amplitude and length. Which I read about, in ALS the amplitude is high and long in length. This is why he pointed towards possible myopathy. Also had increased insertational activity which doesnt mean anything unless you have fibs,psw's, or fasics.

3.) July 15 or so I had the biopsy. This showed, mild atrophic fibers. No signs of denervation or innvervation. no group atrophy. those two factors are usually seen in ALS. I have this written report. Its non-specific to etiology. McClsukey called me and said nothing is really going on here, nothing points to ALS FOR SURE. That was pretty much it.

4.) I called him back and wanted a more complete conversation. I saw him on August 28th. He basically reassured me Im OK. He told me to stop looking at my body so much. He is a nice guy. After this, he pretty much told me he has done everything he could. (he has done every test). He will get me a 2nd opinion if I want it. Im dismissed from his services basically.

This is where I am now...
 

crystalkk

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crystalkk

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annamarie,

I think you and I have are very own rare disease.

Yes I still have all the upper nueron signs.
I told him this week about the the cramping all over my body ( in every muscle) and he asked me if I had a fever. Like it was the flu. I am beginning to hate drs....

I am going to call his office for my reports tomorrow.
He told me he would send them to me, I'm not waiting
I don't know how many times he stuck me I can try and count the marks.
I forgot to ask about the recruitment patteren.
I was so frustrated.... He told me to keep him posted.

When is your appointment with the speacialist.

I took my kids to sesame place today , the whole time I was analzing everyone's hands and feet.

crystalkk
 

Al

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Annmarie. Live for today. Not tomorrow. You can't change tomorrow or Thursday. Try to just do one day at a time.
AL.
 
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