Cristin P
Member
- Joined
- Aug 22, 2018
- Messages
- 17
- Reason
- CALS
- Diagnosis
- 08/2018
- Country
- US
- State
- CA
- City
- San Diego
I can't believe I'm typing these words. My husband Ulf suddenly died today nearly 7 hours ago. I don't understand what happened.. he finally agreed to use the bipap last night for the first time for a few hours. I had checked his osat level and it was 88 when laying down. When I put the bipap on him, it went up to 92, but his heart was at 120bpm last night and this morning. He had another terrible night of sleep last night. He only used the bipap for 2 hours at the start of the night and then another 2 hours in the morning. Today he seemed ok, and when upright in his wheelchair his osat was 95 without the bipap.
Towards the end of the day he was at his computer and suddenly said, "I'm having a panic attack" or "im freaking out" (I can't remember which). He seemed to gasp for air so I pushed him to the bedroom and put on the bipap. He said it wasn't helping and said to get him on the bed. We just got the hoyer lift and he was in the lift moving toward the bed when he said he was passing out. I saw his head fall back and eyes roll back. His lips turned pale and I called 911 right away, and started CPR. They came and kept doing CPR and other stuff. They took him to the hospital and when I got there the doctor told me they weren't able to get his heart started at all. And that he passed away.
I'm so confused, shocked, scared, in disbelief how this happened or why he suddenly died like this. We hadn't had his breathing checked in months because of covid so I don't know if I should have expected this but how could be just suddenly die of heart stopping or something?
He was so miserable the last week or so, crying that he hated his life and he felt so degraded with his disability. And I'm afraid once the lift arrived, did it push him over some edge of not being able to handle the disability?
Towards the end of the day he was at his computer and suddenly said, "I'm having a panic attack" or "im freaking out" (I can't remember which). He seemed to gasp for air so I pushed him to the bedroom and put on the bipap. He said it wasn't helping and said to get him on the bed. We just got the hoyer lift and he was in the lift moving toward the bed when he said he was passing out. I saw his head fall back and eyes roll back. His lips turned pale and I called 911 right away, and started CPR. They came and kept doing CPR and other stuff. They took him to the hospital and when I got there the doctor told me they weren't able to get his heart started at all. And that he passed away.
I'm so confused, shocked, scared, in disbelief how this happened or why he suddenly died like this. We hadn't had his breathing checked in months because of covid so I don't know if I should have expected this but how could be just suddenly die of heart stopping or something?
He was so miserable the last week or so, crying that he hated his life and he felt so degraded with his disability. And I'm afraid once the lift arrived, did it push him over some edge of not being able to handle the disability?