Danijela
Senior member
- Joined
- Dec 3, 2008
- Messages
- 667
- Reason
- PALS
- Diagnosis
- 11/2008
- Country
- UK
- State
- UK
- City
- Bolton
I'm writing this on zero sleep. L went into respiratory distress around 1am. Bipap was blowing air which was coming out through his mouth, unable to get to lungs. Alone, I struggled trying different masks on while he turned grey and I thought we were saying goodbye. It was horrific. I got cough assist and managed to blast his lungs several times which eventually allowed him to get a proper breath.
I sat up all night, listening to his erratic breathing. Called duty doctor and hospice. Hospice can admit him but what we really want are some night sits, someone in the room to allow me to sleep. This is the hardest thing I've ever done. He's scared and bursting into tears. He looks at me and the fear in his eyes breaks my heart. I've paid someone to take our son out for the day...
Any tips on dealing with respiratory distress as describes. Small doses of morphine? I'm petrified and totally alone. D
I sat up all night, listening to his erratic breathing. Called duty doctor and hospice. Hospice can admit him but what we really want are some night sits, someone in the room to allow me to sleep. This is the hardest thing I've ever done. He's scared and bursting into tears. He looks at me and the fear in his eyes breaks my heart. I've paid someone to take our son out for the day...
Any tips on dealing with respiratory distress as describes. Small doses of morphine? I'm petrified and totally alone. D