Hello fellow faith-walkers,
I have been doing a lot of internet research (as I'm sure most people who have family members with ALS do) and found information about creatine, vitamin E and methylcobalamin, a form of Vitamin B12 (see article below). Does anyone use these supplements? Where do you buy them from and how do you decide the dosage? I'm particularly interested in knowing if any follow-up studies were ever done on the B12 mentioned below.
I took my mom to see a Chinese doctor today (he's ninety-something years old). He will not treat patients he does not think he can help, so we are hopeful because he said he would give it a try for a few weeks, but he said that ALS is a very difficult disease to treat with Chinese herbs. He doesn't take many patients because of his old age, but we will keep you all updated if there is any promising results. We're also going to Sunnybrook tomorrow and will probably begin taking Rilutek this week. My sister (who went with my mom last time) said the doctor was lacking in bedside manner. Is there a doctor we should specify in the future? I think it's important for doctors to give hope and not death sentences!
The following article referred to the Vitamin B12:
Japanese Researchers Link Vitamin B-12 to ALS treatment
A group of University of Tokushima researchers in Japan has discovered that methylcobalamin, a form of Vitamin B12, could slow down the attack of amyotrophic lateral sclerosis (ALS). ALS is a progressive neuro-degenerative illness also known as Lou Gehrig's disease.
Researchers say methylcobalamin treatment could prolong the life of severe ALS patients. The research group, led by Dr. Ryuji Kaji, professor of neurology at the University of Tokushima, presented the results at a meeting of the Japanese Society of Neurology in Yokohama in May, 2003.
According to Dr. Yuishin Izumi, a researcher involved in the project, a group 18 ALS patients were injected with a large amount of methylcobalamin and 11 of them remained alive, without the help of respiratory aid, one year to three years and seven months after the treatment. By contrast, another group of 16 ALS patients who received no methylcobalamin treatment all died between half a year and two years and eight months later. The results of the experiment were verified in October 2002.
Look forward to hearing any information any of you could share.
THANKS A MILLION and I will continue to pray for all you angels!
Lily
I have been doing a lot of internet research (as I'm sure most people who have family members with ALS do) and found information about creatine, vitamin E and methylcobalamin, a form of Vitamin B12 (see article below). Does anyone use these supplements? Where do you buy them from and how do you decide the dosage? I'm particularly interested in knowing if any follow-up studies were ever done on the B12 mentioned below.
I took my mom to see a Chinese doctor today (he's ninety-something years old). He will not treat patients he does not think he can help, so we are hopeful because he said he would give it a try for a few weeks, but he said that ALS is a very difficult disease to treat with Chinese herbs. He doesn't take many patients because of his old age, but we will keep you all updated if there is any promising results. We're also going to Sunnybrook tomorrow and will probably begin taking Rilutek this week. My sister (who went with my mom last time) said the doctor was lacking in bedside manner. Is there a doctor we should specify in the future? I think it's important for doctors to give hope and not death sentences!
The following article referred to the Vitamin B12:
Japanese Researchers Link Vitamin B-12 to ALS treatment
A group of University of Tokushima researchers in Japan has discovered that methylcobalamin, a form of Vitamin B12, could slow down the attack of amyotrophic lateral sclerosis (ALS). ALS is a progressive neuro-degenerative illness also known as Lou Gehrig's disease.
Researchers say methylcobalamin treatment could prolong the life of severe ALS patients. The research group, led by Dr. Ryuji Kaji, professor of neurology at the University of Tokushima, presented the results at a meeting of the Japanese Society of Neurology in Yokohama in May, 2003.
According to Dr. Yuishin Izumi, a researcher involved in the project, a group 18 ALS patients were injected with a large amount of methylcobalamin and 11 of them remained alive, without the help of respiratory aid, one year to three years and seven months after the treatment. By contrast, another group of 16 ALS patients who received no methylcobalamin treatment all died between half a year and two years and eight months later. The results of the experiment were verified in October 2002.
Look forward to hearing any information any of you could share.
THANKS A MILLION and I will continue to pray for all you angels!
Lily