pearshoot
Senior member
- Joined
- Feb 6, 2011
- Messages
- 636
- Reason
- PALS
- Diagnosis
- 02/2010
- Country
- US
- State
- mo
- City
- nixa
mar 7 at als clinic i signed up to participate in this trial. started taking creatin in oct 2009 (5grs twice a day) so was told must be off of it for 30 days before i could participate. went off that day. after 3-4 days noticed more fatigue and weakness. day 10 was my worst day since i was diagnosed with als in feb 2010. went back on creatine and after 3 days that feeling was gone. will continue taking it even if i am disallowed to participate in the trial. as stated often in other threads it doesn't help als but if you feel better why not?