Vdog
New member
- Joined
- Jan 27, 2022
- Messages
- 4
- Reason
- Learn about ALS
- Diagnosis
- 00/0000
- Country
- CA
Hello all,
Father died of Bulbar onset 2 years ago…
Quick History of the last 7 mths
Received 2nd dose of covid vaccine July 5 …
After that had weird bladder issues for .3-4 months
-urgency
-discharge
-Not able to empty bladder fully
-lots of Sti symptoms no Sti
-All Blood tests were normal , great actually
-Mri on head Normal
-Emg normal but some nerve degen in right Tricept neuro thinks c6 pinched nerves - waiting on MRI of neck results
Bladder Symptoms eased up after 3 mths but weird sensory sensations all over body and noticed twitching in calves
Weird deep ache in right groin which travelled down left leg in A Month (doc thought possible and blood clot) cleared
About week later weird feeling and burning pain moved to other leg (back of legs in the knee pit
-burning sensation
-tired legs (right and left )
-one episode of both calves burning from my ankles to the top of my calves
-Er doctor put me on anti depression meds thinking my nerves were working on over drive ?
Current symptoms
-all joints making a snapping and cracking sound way more the normal
-weak feeling legs , tired and off sensations
-both hands have a deep ache , stiff fingers
-feet ache on and off and calves ache on and off
-Wide spread facciulations …. I can feel them all over some very strong others feel and look like bugs moving under skin of calves - upper and lower extremities and under left eye
-I did some moderate weight and getting extremely sore after a workout and can’t lift the rest of the week… Arms and shoulders
Neurologist suggested maybe a little bit of fibromyalgia but wasn’t sure , also said I was too young for ALS which isn’t true
- Pains seem to move from Joint to joint and hands have a deep ache 24/7
Please help getting married in 5 months and worried I won’t be able to walk down the aisle.
not sure if this is aggressive FALS as pains and feeling of weakness are in all limbs and have come on reasonably aggressive
Questions
1) is it possible for all limbs to be effected all at once with ALS
2) how many ALS had pain early With sensory issues - read something that 60 percent PALS actually have sensory pains or issues
3) can you determine on an emg the differences between let’s say a pinched nerve degen and als
4) aching hands and hand cramp feelings a
Common als symptom ?
5) this is all very tiring … seems like nothing is diagnosed until loss of function which I’m
Trying to avoid so if it is ALS I can take something to delay progression and get married with my soul mate
Any answers , suggestions would be very much appreciated thanks all and stay safe
Vdawg
Father died of Bulbar onset 2 years ago…
Quick History of the last 7 mths
Received 2nd dose of covid vaccine July 5 …
After that had weird bladder issues for .3-4 months
-urgency
-discharge
-Not able to empty bladder fully
-lots of Sti symptoms no Sti
-All Blood tests were normal , great actually
-Mri on head Normal
-Emg normal but some nerve degen in right Tricept neuro thinks c6 pinched nerves - waiting on MRI of neck results
Bladder Symptoms eased up after 3 mths but weird sensory sensations all over body and noticed twitching in calves
Weird deep ache in right groin which travelled down left leg in A Month (doc thought possible and blood clot) cleared
About week later weird feeling and burning pain moved to other leg (back of legs in the knee pit
-burning sensation
-tired legs (right and left )
-one episode of both calves burning from my ankles to the top of my calves
-Er doctor put me on anti depression meds thinking my nerves were working on over drive ?
Current symptoms
-all joints making a snapping and cracking sound way more the normal
-weak feeling legs , tired and off sensations
-both hands have a deep ache , stiff fingers
-feet ache on and off and calves ache on and off
-Wide spread facciulations …. I can feel them all over some very strong others feel and look like bugs moving under skin of calves - upper and lower extremities and under left eye
-I did some moderate weight and getting extremely sore after a workout and can’t lift the rest of the week… Arms and shoulders
Neurologist suggested maybe a little bit of fibromyalgia but wasn’t sure , also said I was too young for ALS which isn’t true
- Pains seem to move from Joint to joint and hands have a deep ache 24/7
Please help getting married in 5 months and worried I won’t be able to walk down the aisle.
not sure if this is aggressive FALS as pains and feeling of weakness are in all limbs and have come on reasonably aggressive
Questions
1) is it possible for all limbs to be effected all at once with ALS
2) how many ALS had pain early With sensory issues - read something that 60 percent PALS actually have sensory pains or issues
3) can you determine on an emg the differences between let’s say a pinched nerve degen and als
4) aching hands and hand cramp feelings a
Common als symptom ?
5) this is all very tiring … seems like nothing is diagnosed until loss of function which I’m
Trying to avoid so if it is ALS I can take something to delay progression and get married with my soul mate
Any answers , suggestions would be very much appreciated thanks all and stay safe
Vdawg