Tobes61
New member
- Joined
- Oct 18, 2021
- Messages
- 1
- Reason
- CALS
- Diagnosis
- 01/2017
- Country
- US
- State
- VA
- City
- Arlington
Hi all,
I have not posted before, but my brother has, and we are very appreciative of this wonderful community. I am trying to understand what is known about the impact of Covid on PALS and what CALS are doing practically to limit risk. So far, I have found very little information. We are assuming my mother (the PALS) is at extremely high risk if she gets infected. My wife and I have always been very careful, but the Omicron spread seems pervasive. Even with extremely limited interaction only with people who are equally careful, my wife was recently closely exposed and is quarantining, and we are awaiting PCR testing (at home testing has been negative). A bit more detail about our PALS:
We moved my 87-year-old mother into our home in November from an assisted living center after it became apparent that she was not getting the care she needed. Her ALS has slowly progressed over 7 years, and her breathing, swallowing, and speaking are still pretty strong, and she is cognitively all present. She cannot move much of her body below the shoulders other than a finger or two. We have not had a recent respiratory assessment, but her cough is very weak. The move was extremely stressful but we are getting to our new normal. Thankfully, my mom is 1,000 times happier in our home, and is receiving the kind of care she deserves.
Any advice would be appreciated-- either about what is known regarding the impact of Covid on PALS, or steps to stay extra safe. The recent close Covid exposure has increased our already high level of anxiety. I searched before posting to try to find other threads on this, but didn't find anything, so sorry if I have missed the spot people are discussing this topic already.
Best regards to all and thanks in advance for any guidance...
I have not posted before, but my brother has, and we are very appreciative of this wonderful community. I am trying to understand what is known about the impact of Covid on PALS and what CALS are doing practically to limit risk. So far, I have found very little information. We are assuming my mother (the PALS) is at extremely high risk if she gets infected. My wife and I have always been very careful, but the Omicron spread seems pervasive. Even with extremely limited interaction only with people who are equally careful, my wife was recently closely exposed and is quarantining, and we are awaiting PCR testing (at home testing has been negative). A bit more detail about our PALS:
We moved my 87-year-old mother into our home in November from an assisted living center after it became apparent that she was not getting the care she needed. Her ALS has slowly progressed over 7 years, and her breathing, swallowing, and speaking are still pretty strong, and she is cognitively all present. She cannot move much of her body below the shoulders other than a finger or two. We have not had a recent respiratory assessment, but her cough is very weak. The move was extremely stressful but we are getting to our new normal. Thankfully, my mom is 1,000 times happier in our home, and is receiving the kind of care she deserves.
Any advice would be appreciated-- either about what is known regarding the impact of Covid on PALS, or steps to stay extra safe. The recent close Covid exposure has increased our already high level of anxiety. I searched before posting to try to find other threads on this, but didn't find anything, so sorry if I have missed the spot people are discussing this topic already.
Best regards to all and thanks in advance for any guidance...